deltatrials
Terminated OBSERVATIONAL NCT00001803

Von Hippel-Lindau Disease Genetic Epidemiology Study

Von Hippel-Lindau (VHL) Disease Genetic Epidemiology Study

Sponsor: National Cancer Institute (NCI)

Updated 13 times since 2017 Last updated: Jan 9, 2020 Started: Feb 26, 1999 Primary completion: Jan 9, 2020 Completion: Jan 9, 2020
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

Terminated

IRB approval lapsed and PI has not responded to requests to submit CR.

This observational or N/A phase trial investigates Kidney Neoplasms and Von Hippel Lindau Disease and is currently terminated or withdrawn. National Cancer Institute (NCI) leads this study, which shows 13 recorded versions since 1999 — indicating substantial longitudinal coverage. As an oncology study, it adds to the longitudinal record of treatment development for this indication.

Status Flow

~Jan 2017 – ~Apr 2018 · 15 months · monthly snapshot~Apr 2018 – ~Jun 2018 · 2 months · monthly snapshot~Jun 2018 – ~Sep 2018 · 3 months · monthly snapshot~Sep 2018 – ~May 2019 · 8 months · monthly snapshot~May 2019 – ~Jun 2019 · 31 days · monthly snapshot~Jun 2019 – ~Jul 2019 · 30 days · monthly snapshot~Jul 2019 – ~Aug 2019 · 31 days · monthly snapshot~Aug 2019 – ~Oct 2019 · 2 months · monthly snapshot~Oct 2019 – ~Feb 2020 · 4 months · monthly snapshot~Feb 2020 – ~Jan 2021 · 11 months · monthly snapshot~Jan 2021 – ~Jul 2024 · 42 months · monthly snapshot~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshot~Sep 2024 – present · 22 months · monthly snapshot

Change History

13 versions recorded
  1. Sep 2024 — Present [monthly]

    Terminated

  2. Jul 2024 — Sep 2024 [monthly]

    Terminated

  3. Jan 2021 — Jul 2024 [monthly]

    Terminated

  4. Feb 2020 — Jan 2021 [monthly]

    Terminated

    Status: Unknown StatusTerminated

  5. Oct 2019 — Feb 2020 [monthly]

    Unknown Status

    Status: Active Not RecruitingUnknown Status

Show 8 earlier versions
  1. Aug 2019 — Oct 2019 [monthly]

    Active Not Recruiting

  2. Jul 2019 — Aug 2019 [monthly]

    Active Not Recruiting

  3. Jun 2019 — Jul 2019 [monthly]

    Active Not Recruiting

  4. May 2019 — Jun 2019 [monthly]

    Active Not Recruiting

  5. Sep 2018 — May 2019 [monthly]

    Active Not Recruiting

  6. Jun 2018 — Sep 2018 [monthly]

    Active Not Recruiting

  7. Apr 2018 — Jun 2018 [monthly]

    Active Not Recruiting

    Phase: NANone

  8. Jan 2017 — Apr 2018 [monthly]

    Active Not Recruiting NA

    First recorded

Feb 1999

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • National Cancer Institute (NCI)
Data source: National Institutes of Health Clinical Center (CC)

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations