Establishment of a Database for Long-Term Monitoring of Patients With Nephropathic Cystinosis
Sponsor: Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
A observational or N/A phase clinical study on Cystinosis, this trial is completed. The trial is conducted by Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) and has accumulated 6 data snapshots since 1999. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.
Change History
6 versions recorded-
Sep 2024 — Present [monthly]
Completed
-
Jul 2024 — Sep 2024 [monthly]
Completed
-
Jan 2021 — Jul 2024 [monthly]
Completed
-
Jun 2018 — Jan 2021 [monthly]
Completed
-
Apr 2018 — Jun 2018 [monthly]
Completed
Phase: NA → None
▶ Show 1 earlier version
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Jan 2017 — Apr 2018 [monthly]
Completed NA
First recorded
Oct 1999
Trial started
Per CT.gov start date — pre-dates our first snapshot
Eligibility Summary
No eligibility information available.
Contact Information
- Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
- National Center for Research Resources (NCRR)
- University of California, San Diego
For direct contact, visit the study record on ClinicalTrials.gov .
Study Locations
- • La Jolla, United States