Establishment of the National Epidermolysis Bullosa Registry
Sponsor: National Center for Research Resources (NCRR)
This observational or N/A phase trial investigates Epidermolysis Bullosa and is currently completed. National Center for Research Resources (NCRR) leads this study, which shows 6 recorded versions since 1986 — indicating limited longitudinal coverage. The change history captured here reflects the iterative nature of clinical trial conduct.
Change History
6 versions recorded-
Sep 2024 — Present [monthly]
Completed
-
Jul 2024 — Sep 2024 [monthly]
Completed
-
Jan 2021 — Jul 2024 [monthly]
Completed
-
Jun 2018 — Jan 2021 [monthly]
Completed
-
Apr 2018 — Jun 2018 [monthly]
Completed
Phase: NA → None
▶ Show 1 earlier version
-
Jan 2017 — Apr 2018 [monthly]
Completed NA
First recorded
Sep 1986
Trial started
Per CT.gov start date — pre-dates our first snapshot
Eligibility Summary
No eligibility information available.
Contact Information
- National Center for Research Resources (NCRR)
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
- Rockefeller University
For direct contact, visit the study record on ClinicalTrials.gov .
Study Locations
No location information available.