National Registry for Ichthyosis and Related Disorders
Research Registry for Inherited Disorders of Keratinization
Sponsor: National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
This observational or N/A phase trial investigates Darier Disease and Hailey-Hailey Disease and is currently completed. National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) leads this study, which shows 11 recorded versions since 1994 — indicating substantial longitudinal coverage. The change history captured here reflects the iterative nature of clinical trial conduct.
Status Flow
Change History
11 versions recorded-
Sep 2024 — Present [monthly]
Completed
-
Jul 2024 — Sep 2024 [monthly]
Completed
-
Sep 2022 — Jul 2024 [monthly]
Completed
Status: Unknown Status → Completed
-
Dec 2021 — Sep 2022 [monthly]
Unknown Status
-
Jan 2021 — Dec 2021 [monthly]
Unknown Status
▶ Show 6 earlier versions
-
Nov 2020 — Jan 2021 [monthly]
Unknown Status
-
Jun 2018 — Nov 2020 [monthly]
Unknown Status
-
May 2018 — Jun 2018 [monthly]
Unknown Status
-
Apr 2018 — May 2018 [monthly]
Unknown Status
Phase: NA → None
-
Aug 2017 — Apr 2018 [monthly]
Unknown Status NA
-
Jan 2017 — Aug 2017 [monthly]
Unknown Status NA
First recorded
Sep 1994
Trial started
Per CT.gov start date — pre-dates our first snapshot
Eligibility Summary
No eligibility information available.
Contact Information
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
For direct contact, visit the study record on ClinicalTrials.gov .