Completed OBSERVATIONAL NCT00466349

International SMA Patient Registry

International Spinal Muscular Atrophy Patient Registry

Sponsor: Cure SMA

Updated 8 times since 2017 Last updated: Aug 6, 2018 Started: May 31, 1986 Primary completion: Jan 31, 2018 Completion: Jan 31, 2018

This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

Listed as NCT00466349, this observational or N/A phase trial focuses on Muscular Atrophy, Spinal and remains completed. Sponsored by Cure SMA, it has been updated 8 times since 1986, reflecting limited change activity. This study adds to the evidence base for this therapeutic area through structured, versioned documentation.

Status Flow

Change History

8 versions recorded

Sep 2024 — Present [monthly]

Completed
Jul 2024 — Sep 2024 [monthly]

Completed
Jan 2021 — Jul 2024 [monthly]

Completed
Sep 2018 — Jan 2021 [monthly]

Completed

Status: Active Not Recruiting → Completed
Jun 2018 — Sep 2018 [monthly]

Active Not Recruiting

▶ Show 3 earlier versions

Apr 2018 — Jun 2018 [monthly]

Active Not Recruiting

Phase: NA → None
Mar 2017 — Apr 2018 [monthly]

Active Not Recruiting NA

Status: Recruiting → Active Not Recruiting
Jan 2017 — Mar 2017 [monthly]

Recruiting NA

First recorded

May 1986

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:

Cure SMA
Indiana University School of Medicine

Data source: Indiana University

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations

• Indianapolis, United States