Longitudinal Study of the Natural History of Duchenne Muscular Dystrophy (DMD)
Longitudinal Study of the Relationship Between Impairment, Activity Limitation, Participation and Quality of Life in Persons With Confirmed Duchenne Muscular Dystrophy (DMD)
Sponsor: Cooperative International Neuromuscular Research Group
A observational or N/A phase clinical study on Duchenne Muscular Dystrophy, this trial is ongoing. The trial is conducted by Cooperative International Neuromuscular Research Group and has accumulated 12 data snapshots since 2005. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.
Status Flow
Change History
12 versions recorded-
Sep 2025 — Present [monthly]
Unknown
-
Sep 2024 — Sep 2025 [monthly]
Unknown
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Jul 2024 — Sep 2024 [monthly]
Unknown
Status: Unknown Status → Unknown
-
Dec 2021 — Jul 2024 [monthly]
Unknown Status
-
Jan 2021 — Dec 2021 [monthly]
Unknown Status
▶ Show 7 earlier versions
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Nov 2020 — Jan 2021 [monthly]
Unknown Status
-
Jan 2020 — Nov 2020 [monthly]
Unknown Status
Status: Active Not Recruiting → Unknown Status
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Jun 2018 — Jan 2020 [monthly]
Active Not Recruiting
-
May 2018 — Jun 2018 [monthly]
Active Not Recruiting
-
Apr 2018 — May 2018 [monthly]
Active Not Recruiting
Phase: NA → None
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Aug 2017 — Apr 2018 [monthly]
Active Not Recruiting NA
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Jan 2017 — Aug 2017 [monthly]
Active Not Recruiting NA
First recorded
Dec 2005
Trial started
Per CT.gov start date — pre-dates our first snapshot
Eligibility Summary
No eligibility information available.
Contact Information
- Cooperative International Neuromuscular Research Group
- National Institutes of Health (NIH)
- Parent Project Muscular Dystrophy
- U.S. Department of Education
- United States Department of Defense
For direct contact, visit the study record on ClinicalTrials.gov .