deltatrials
Completed OBSERVATIONAL NCT00566878

Pompe Lactation Sub-Registry

A Sub-Registry to Determine the Presence of Alglucosidase Alfa in Breast Milk From Women With Pompe Disease Treated With Alglucosidase Alfa.

Sponsor: Genzyme, a Sanofi Company

Interventions alglucosidase alfa
Updated 13 times since 2017 Last updated: Mar 15, 2024 Started: Mar 31, 2012 Primary completion: Feb 9, 2024 Completion: Feb 9, 2024
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

A observational or N/A phase clinical study on Glycogen Storage Disease and Pompe Disease, this trial is completed. The trial is conducted by Genzyme, a Sanofi Company and has accumulated 13 data snapshots since 2012. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.

Status Flow

~Jan 2017 – ~Feb 2017 · 31 days · monthly snapshot~Feb 2017 – ~Jan 2018 · 11 months · monthly snapshot~Jan 2018 – ~Apr 2018 · 3 months · monthly snapshot~Apr 2018 – ~Jun 2018 · 2 months · monthly snapshot~Jun 2018 – ~Jan 2021 · 31 months · monthly snapshot~Jan 2021 – ~Jan 2022 · 12 months · monthly snapshot~Jan 2022 – ~Sep 2022 · 8 months · monthly snapshot~Sep 2022 – ~Feb 2023 · 5 months · monthly snapshot~Feb 2023 – ~Mar 2024 · 13 months · monthly snapshot~Mar 2024 – ~Apr 2024 · 31 days · monthly snapshot~Apr 2024 – ~Jul 2024 · 3 months · monthly snapshot~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshot~Sep 2024 – present · 23 months · monthly snapshot

Change History

13 versions recorded
  1. Sep 2024 — Present [monthly]

    Completed

  2. Jul 2024 — Sep 2024 [monthly]

    Completed

  3. Apr 2024 — Jul 2024 [monthly]

    Completed

    Status: Active Not RecruitingCompleted

  4. Mar 2024 — Apr 2024 [monthly]

    Active Not Recruiting

  5. Feb 2023 — Mar 2024 [monthly]

    Active Not Recruiting

    Status: RecruitingActive Not Recruiting

Show 8 earlier versions
  1. Sep 2022 — Feb 2023 [monthly]

    Recruiting

    Status: Unknown StatusRecruiting

  2. Jan 2022 — Sep 2022 [monthly]

    Unknown Status

    Status: RecruitingUnknown Status

  3. Jan 2021 — Jan 2022 [monthly]

    Recruiting

  4. Jun 2018 — Jan 2021 [monthly]

    Recruiting

  5. Apr 2018 — Jun 2018 [monthly]

    Recruiting

    Phase: NANone

  6. Jan 2018 — Apr 2018 [monthly]

    Recruiting NA

    Phase: PHASE4NA

  7. Feb 2017 — Jan 2018 [monthly]

    Recruiting PHASE4

  8. Jan 2017 — Feb 2017 [monthly]

    Recruiting PHASE4

    First recorded

Mar 2012

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • Genzyme, a Sanofi Company
Data source: Sanofi

For direct contact, visit the study record on ClinicalTrials.gov .