deltatrials
Recruiting OBSERVATIONAL NCT01005654

Prospective Comprehensive Molecular Analysis of Endocrine Neoplasms

Sponsor: National Cancer Institute (NCI)

Updated 88 times since 2017 Last updated: Apr 28, 2026 Started: Oct 7, 2009
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

This observational or N/A phase trial investigates Adrenal Neoplasm and Endocrine Tumors and is currently actively recruiting participants. National Cancer Institute (NCI) leads this study, which shows 88 recorded versions since 2009 — indicating substantial longitudinal coverage. As an oncology study, it adds to the longitudinal record of treatment development for this indication.

Study Description(click to expand)

Background: Endocrine neoplasms are among the fastest growing tumors in incidence in the United States. Between 1995 and 2005, the incidence of thyroid carcinoma has increased 98 percent. Tumors of the thyroid, parathyroid, adrenal gland and gastrointestinal-pancreatic neuroendocrine tumors are among some of the most difficult tumors to clinically and histopathological distinguish as benign or malignant. Moreover, endocrine neoplasms provide an extremely important model for studying the important molecular changes that lead to carcinogenesis because of their diverse clinical behavior, even when having the same TNM stage and histologic features. The Surgical Oncology Program (formerly known as Endocrine Oncology Branch), NCI has a focus on studying the molecular changes that are involved in endocrine cancer initiation and progression. In addition, this section has primary responsibility for providing endocrine surgery consultative services to the NIH. As such, we are uniquely positioned to acquire and perform important studies to help identify diagnostic and predictive markers as well as therapeutic targets that may have significant clinical ramifications. Objectives: To develop a genetic, epigenetic, metabolomic, and proteomic profile of endocrine neoplasm that will allow us to distinguish benign from malignant tumor for each of the endocrine histologies under study. This objective will drive the...

Background:

Endocrine neoplasms are among the fastest growing tumors in incidence in the United States. Between 1995 and 2005, the incidence of thyroid carcinoma has increased 98 percent.

Tumors of the thyroid, parathyroid, adrenal gland and gastrointestinal-pancreatic neuroendocrine tumors are among some of the most difficult tumors to clinically and histopathological distinguish as benign or malignant.

Moreover, endocrine neoplasms provide an extremely important model for studying the important molecular changes that lead to carcinogenesis because of their diverse clinical behavior, even when having the same TNM stage and histologic features.

The Surgical Oncology Program (formerly known as Endocrine Oncology Branch), NCI has a focus on studying the molecular changes that are involved in endocrine cancer initiation and progression. In addition, this section has primary responsibility for providing endocrine surgery consultative services to the NIH. As such, we are uniquely positioned to acquire and perform important studies to help identify diagnostic and predictive markers as well as therapeutic targets that may have significant clinical ramifications.

Objectives:

To develop a genetic, epigenetic, metabolomic, and proteomic profile of endocrine neoplasm that will allow us to distinguish benign from malignant tumor for each of the endocrine histologies under study. This objective will drive the statistical endpoints of the study.

Eligibility:

Participants with radiographic evidence of, biochemical evidence of, or histologically/cytologically proven, endocrine neoplasms, including lesions of the thyroid, parathyroid, adrenal, extra-adrenal endocrine nests, paragangliomas, neuroblastomas, pancreas and gastrointestinal tract. Or participants with a described pre or potentially malignant condition that requires surgery or biopsy as a part of the standard of care treatment and/or follow up.

Participants must have an ECOG performance score of 0-2.

Participants must have physical examination parameters within acceptable limits by standard of practice guidelines prior to biopsy or surgery.

Design:

A tissue acquisition trial in which tissues will be obtained at the time of surgical operation for the removal of neoplasms of the thyroid, parathyroid, adrenal, pancreas, paragangliomas and/or extra adrenal nests of neuroendocrine tissue, and gastrointestinal neuroendocrine tumors.

At the time of surgical operation, blood samples will be obtained from the operative field during the removal of neoplasms of the thyroid, parathyroid, adrenal, pancreas, paragangliomas and/or extra adrenal neuroendocrine tissue and gastrointestinal neuroendocrine tumors.

No investigational therapy will be given.

It is anticipated that 2,300 participants will be followed on this study, however, to account for screening up to 2,415 participants may be enrolled.

Status Flow

~Jan 2017 – ~May 2017 · 4 months · monthly snapshot~May 2017 – ~Jun 2017 · 31 days · monthly snapshot~Jun 2017 – ~Sep 2017 · 3 months · monthly snapshot~Sep 2017 – ~Apr 2018 · 7 months · monthly snapshot~Apr 2018 – ~Jun 2018 · 2 months · monthly snapshot~Jun 2018 – ~Jul 2018 · 30 days · monthly snapshot~Jul 2018 – ~Sep 2018 · 2 months · monthly snapshot~Sep 2018 – ~Nov 2018 · 2 months · monthly snapshot~Nov 2018 – ~Jan 2019 · 2 months · monthly snapshot~Jan 2019 – ~Feb 2019 · 31 days · monthly snapshot~Feb 2019 – ~Mar 2019 · 28 days · monthly snapshot~Mar 2019 – ~Apr 2019 · 31 days · monthly snapshot~Apr 2019 – ~Jun 2019 · 2 months · monthly snapshot~Jun 2019 – ~Jul 2019 · 30 days · monthly snapshot~Jul 2019 – ~Aug 2019 · 31 days · monthly snapshot~Aug 2019 – ~Sep 2019 · 31 days · monthly snapshot~Sep 2019 – ~Oct 2019 · 30 days · monthly snapshot~Oct 2019 – ~Nov 2019 · 31 days · monthly snapshot~Nov 2019 – ~Dec 2019 · 30 days · monthly snapshot~Dec 2019 – ~Jan 2020 · 31 days · monthly snapshot~Jan 2020 – ~Feb 2020 · 31 days · monthly snapshot~Feb 2020 – ~Apr 2020 · 2 months · monthly snapshot~Apr 2020 – ~May 2020 · 30 days · monthly snapshot~May 2020 – ~Aug 2020 · 3 months · monthly snapshot~Aug 2020 – ~Sep 2020 · 31 days · monthly snapshot~Sep 2020 – ~Dec 2020 · 3 months · monthly snapshot~Dec 2020 – ~Jan 2021 · 31 days · monthly snapshot~Jan 2021 – ~Feb 2021 · 31 days · monthly snapshot~Feb 2021 – ~Mar 2021 · 28 days · monthly snapshot~Mar 2021 – ~Apr 2021 · 31 days · monthly snapshot~Apr 2021 – ~May 2021 · 30 days · monthly snapshot~May 2021 – ~Jun 2021 · 31 days · monthly snapshot~Jun 2021 – ~Sep 2021 · 3 months · monthly snapshot~Sep 2021 – ~Oct 2021 · 30 days · monthly snapshot~Oct 2021 – ~Nov 2021 · 31 days · monthly snapshot~Nov 2021 – ~Dec 2021 · 30 days · monthly snapshot~Dec 2021 – ~Jan 2022 · 31 days · monthly snapshot~Jan 2022 – ~Feb 2022 · 31 days · monthly snapshot~Feb 2022 – ~Apr 2022 · 59 days · monthly snapshot~Apr 2022 – ~May 2022 · 30 days · monthly snapshot~May 2022 – ~Jun 2022 · 31 days · monthly snapshot~Jun 2022 – ~Jul 2022 · 30 days · monthly snapshot~Jul 2022 – ~Sep 2022 · 2 months · monthly snapshot~Sep 2022 – ~Nov 2022 · 2 months · monthly snapshot~Nov 2022 – ~Dec 2022 · 30 days · monthly snapshot~Dec 2022 – ~Jan 2023 · 31 days · monthly snapshot~Jan 2023 – ~Feb 2023 · 31 days · monthly snapshot~Feb 2023 – ~Mar 2023 · 28 days · monthly snapshot~Mar 2023 – ~Apr 2023 · 31 days · monthly snapshot~Apr 2023 – ~May 2023 · 30 days · monthly snapshot~May 2023 – ~Jun 2023 · 31 days · monthly snapshot~Jun 2023 – ~Jul 2023 · 30 days · monthly snapshot~Jul 2023 – ~Aug 2023 · 31 days · monthly snapshot~Aug 2023 – ~Sep 2023 · 31 days · monthly snapshot~Sep 2023 – ~Oct 2023 · 30 days · monthly snapshot~Oct 2023 – ~Nov 2023 · 31 days · monthly snapshot~Nov 2023 – ~Dec 2023 · 30 days · monthly snapshot~Dec 2023 – ~Jan 2024 · 31 days · monthly snapshot~Jan 2024 – ~Feb 2024 · 31 days · monthly snapshot~Feb 2024 – ~Mar 2024 · 29 days · monthly snapshot~Mar 2024 – ~Apr 2024 · 31 days · monthly snapshot~Apr 2024 – ~May 2024 · 30 days · monthly snapshot~May 2024 – ~Jun 2024 · 31 days · monthly snapshot~Jun 2024 – ~Jul 2024 · 30 days · monthly snapshot~Jul 2024 – ~Aug 2024 · 31 days · monthly snapshot~Aug 2024 – ~Sep 2024 · 31 days · monthly snapshot~Sep 2024 – ~Oct 2024 · 30 days · monthly snapshot~Oct 2024 – ~Nov 2024 · 31 days · monthly snapshot~Nov 2024 – ~Dec 2024 · 30 days · monthly snapshot~Dec 2024 – ~Jan 2025 · 31 days · monthly snapshot~Jan 2025 – ~Feb 2025 · 31 days · monthly snapshot~Feb 2025 – ~Mar 2025 · 28 days · monthly snapshot~Mar 2025 – ~Apr 2025 · 31 days · monthly snapshot~Apr 2025 – ~May 2025 · 30 days · monthly snapshot~May 2025 – ~Jun 2025 · 31 days · monthly snapshot~Jun 2025 – ~Jul 2025 · 30 days · monthly snapshot~Jul 2025 – ~Aug 2025 · 31 days · monthly snapshot~Aug 2025 – ~Sep 2025 · 31 days · monthly snapshot~Sep 2025 – ~Oct 2025 · 30 days · monthly snapshot~Oct 2025 – ~Nov 2025 · 31 days · monthly snapshot~Nov 2025 – ~Dec 2025 · 30 days · monthly snapshot~Dec 2025 – ~Jan 2026 · 31 days · monthly snapshot~Jan 2026 – ~Feb 2026 · 31 days · monthly snapshot~Feb 2026 – ~Mar 2026 · 28 days · monthly snapshot~Mar 2026 – ~Apr 2026 · 46 days · monthly snapshotApr 16, 2026 – Apr 28, 2026 · 12 days · daily APIApr 28, 2026 – May 4, 2026 · 6 days · daily APIMay 4, 2026 – present · 2 months · daily API

Change History

88 versions recorded
  1. May 4, 2026 — Present [daily]

    Recruiting

  2. Apr 28, 2026 — May 4, 2026 [daily]

    Recruiting

  3. Apr 16, 2026 — Apr 28, 2026 [daily]

    Recruiting

  4. Mar 2026 — Apr 2026 [monthly]

    Recruiting

  5. Feb 2026 — Mar 2026 [monthly]

    Recruiting

Show 83 earlier versions
  1. Jan 2026 — Feb 2026 [monthly]

    Recruiting

  2. Dec 2025 — Jan 2026 [monthly]

    Recruiting

  3. Nov 2025 — Dec 2025 [monthly]

    Recruiting

  4. Oct 2025 — Nov 2025 [monthly]

    Recruiting

  5. Sep 2025 — Oct 2025 [monthly]

    Recruiting

  6. Aug 2025 — Sep 2025 [monthly]

    Recruiting

  7. Jul 2025 — Aug 2025 [monthly]

    Recruiting

  8. Jun 2025 — Jul 2025 [monthly]

    Recruiting

  9. May 2025 — Jun 2025 [monthly]

    Recruiting

  10. Apr 2025 — May 2025 [monthly]

    Recruiting

  11. Mar 2025 — Apr 2025 [monthly]

    Recruiting

  12. Feb 2025 — Mar 2025 [monthly]

    Recruiting

  13. Jan 2025 — Feb 2025 [monthly]

    Recruiting

  14. Dec 2024 — Jan 2025 [monthly]

    Recruiting

  15. Nov 2024 — Dec 2024 [monthly]

    Recruiting

  16. Oct 2024 — Nov 2024 [monthly]

    Recruiting

  17. Sep 2024 — Oct 2024 [monthly]

    Recruiting

  18. Aug 2024 — Sep 2024 [monthly]

    Recruiting

  19. Jul 2024 — Aug 2024 [monthly]

    Recruiting

  20. Jun 2024 — Jul 2024 [monthly]

    Recruiting

  21. May 2024 — Jun 2024 [monthly]

    Recruiting

  22. Apr 2024 — May 2024 [monthly]

    Recruiting

  23. Mar 2024 — Apr 2024 [monthly]

    Recruiting

  24. Feb 2024 — Mar 2024 [monthly]

    Recruiting

  25. Jan 2024 — Feb 2024 [monthly]

    Recruiting

  26. Dec 2023 — Jan 2024 [monthly]

    Recruiting

  27. Nov 2023 — Dec 2023 [monthly]

    Recruiting

  28. Oct 2023 — Nov 2023 [monthly]

    Recruiting

  29. Sep 2023 — Oct 2023 [monthly]

    Recruiting

  30. Aug 2023 — Sep 2023 [monthly]

    Recruiting

  31. Jul 2023 — Aug 2023 [monthly]

    Recruiting

  32. Jun 2023 — Jul 2023 [monthly]

    Recruiting

  33. May 2023 — Jun 2023 [monthly]

    Recruiting

  34. Apr 2023 — May 2023 [monthly]

    Recruiting

  35. Mar 2023 — Apr 2023 [monthly]

    Recruiting

  36. Feb 2023 — Mar 2023 [monthly]

    Recruiting

  37. Jan 2023 — Feb 2023 [monthly]

    Recruiting

  38. Dec 2022 — Jan 2023 [monthly]

    Recruiting

  39. Nov 2022 — Dec 2022 [monthly]

    Recruiting

  40. Sep 2022 — Nov 2022 [monthly]

    Recruiting

  41. Jul 2022 — Sep 2022 [monthly]

    Recruiting

  42. Jun 2022 — Jul 2022 [monthly]

    Recruiting

  43. May 2022 — Jun 2022 [monthly]

    Recruiting

  44. Apr 2022 — May 2022 [monthly]

    Recruiting

  45. Feb 2022 — Apr 2022 [monthly]

    Recruiting

  46. Jan 2022 — Feb 2022 [monthly]

    Recruiting

  47. Dec 2021 — Jan 2022 [monthly]

    Recruiting

  48. Nov 2021 — Dec 2021 [monthly]

    Recruiting

  49. Oct 2021 — Nov 2021 [monthly]

    Recruiting

  50. Sep 2021 — Oct 2021 [monthly]

    Recruiting

  51. Jun 2021 — Sep 2021 [monthly]

    Recruiting

  52. May 2021 — Jun 2021 [monthly]

    Recruiting

  53. Apr 2021 — May 2021 [monthly]

    Recruiting

  54. Mar 2021 — Apr 2021 [monthly]

    Recruiting

  55. Feb 2021 — Mar 2021 [monthly]

    Recruiting

  56. Jan 2021 — Feb 2021 [monthly]

    Recruiting

  57. Dec 2020 — Jan 2021 [monthly]

    Recruiting

  58. Sep 2020 — Dec 2020 [monthly]

    Recruiting

  59. Aug 2020 — Sep 2020 [monthly]

    Recruiting

  60. May 2020 — Aug 2020 [monthly]

    Recruiting

  61. Apr 2020 — May 2020 [monthly]

    Recruiting

  62. Feb 2020 — Apr 2020 [monthly]

    Recruiting

  63. Jan 2020 — Feb 2020 [monthly]

    Recruiting

  64. Dec 2019 — Jan 2020 [monthly]

    Recruiting

  65. Nov 2019 — Dec 2019 [monthly]

    Recruiting

  66. Oct 2019 — Nov 2019 [monthly]

    Recruiting

  67. Sep 2019 — Oct 2019 [monthly]

    Recruiting

  68. Aug 2019 — Sep 2019 [monthly]

    Recruiting

  69. Jul 2019 — Aug 2019 [monthly]

    Recruiting

  70. Jun 2019 — Jul 2019 [monthly]

    Recruiting

  71. Apr 2019 — Jun 2019 [monthly]

    Recruiting

  72. Mar 2019 — Apr 2019 [monthly]

    Recruiting

  73. Feb 2019 — Mar 2019 [monthly]

    Recruiting

  74. Jan 2019 — Feb 2019 [monthly]

    Recruiting

  75. Nov 2018 — Jan 2019 [monthly]

    Recruiting

  76. Sep 2018 — Nov 2018 [monthly]

    Recruiting

  77. Jul 2018 — Sep 2018 [monthly]

    Recruiting

  78. Jun 2018 — Jul 2018 [monthly]

    Recruiting

  79. Apr 2018 — Jun 2018 [monthly]

    Recruiting

    Phase: NANone

  80. Sep 2017 — Apr 2018 [monthly]

    Recruiting NA

  81. Jun 2017 — Sep 2017 [monthly]

    Recruiting NA

  82. May 2017 — Jun 2017 [monthly]

    Recruiting NA

  83. Jan 2017 — May 2017 [monthly]

    Recruiting NA

    First recorded

Oct 2009

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

Background: * Endocrine neoplasms (tumors) are among the fastest growing tumors in incidence in the United States. Furthermore, it is often difficult to distinguish between benign or malignant tumors in cancers of the thyroid, parathyroid, adrenal gland, and pancreas. More research is needed to improve detection and treatment options for patients who develop these kinds of cancer. * Researchers are interested in studying the molecular changes that are involved in endocrine cancer development and growth. To collect a sample of tumor specimens and healthy tissue for further study, researchers are specifically looking for samples from participants who are scheduled for surgery or biopsy on endocrine tumors. Objectives: \- To collect samples of precancerous, cancerous, and healthy tissue from individuals who are scheduled for surgery or biopsy of endocrine system tumors. Eligibility: \- Individuals who have a tumor in or around their thyroid, parathyroid, adrenal gland, pancreas, or any neuroendocrine tissue, and are scheduled for surgery at the National Institutes of Health Clinical Center. Design: * Participants in this study will provide blood and urine samples prior to surgery. * During the surgery or biopsy, pieces of the tumor or precancerous growth and pieces of normal tissue near to the tumor will be removed for ongoing and future research. The rest of the tumor or growth will be sent for analysis. * After surgery, participants will receive routine care until discharge, and doctors will discuss possible treatment options. If there is an appropriate NIH protocol, participants may choose to be treated at the NIH. * After discharge, participants will return to the clinic for a routine postoperative check about 6 weeks following the operation, and then may be followed yearly at the Clinical Center or by phone.

Contact Information

Sponsor contact:
  • National Cancer Institute (NCI)
Data source: ClinicalTrials.gov

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations