deltatrials
Completed OBSERVATIONAL NCT01374360

Paroxysmal Nocturnal Hemoglobinuria (PNH) Registry

Sponsor: Alexion Pharmaceuticals, Inc.

Conditions Paroxysmal Nocturnal Hemoglobinuria
Updated 20 times since 2017 Last updated: Jan 16, 2026 Started: Oct 29, 2004 Primary completion: Apr 14, 2025 Completion: Apr 14, 2025
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

This observational or N/A phase trial investigates Paroxysmal Nocturnal Hemoglobinuria and is currently completed. Alexion Pharmaceuticals, Inc. leads this study, which shows 20 recorded versions since 2004 — indicating substantial longitudinal coverage. The change history captured here reflects the iterative nature of clinical trial conduct.

Status Flow

~Jan 2017 – ~Feb 2017 · 31 days · monthly snapshot~Feb 2017 – ~Mar 2017 · 28 days · monthly snapshot~Mar 2017 – ~May 2017 · 2 months · monthly snapshot~May 2017 – ~Feb 2018 · 9 months · monthly snapshot~Feb 2018 – ~Apr 2018 · 59 days · monthly snapshot~Apr 2018 – ~Jun 2018 · 2 months · monthly snapshot~Jun 2018 – ~May 2019 · 11 months · monthly snapshot~May 2019 – ~Jun 2020 · 13 months · monthly snapshot~Jun 2020 – ~Jul 2020 · 30 days · monthly snapshot~Jul 2020 – ~Jan 2021 · 6 months · monthly snapshot~Jan 2021 – ~Jan 2022 · 12 months · monthly snapshot~Jan 2022 – ~Jan 2023 · 12 months · monthly snapshot~Jan 2023 – ~Apr 2023 · 3 months · monthly snapshot~Apr 2023 – ~Dec 2023 · 8 months · monthly snapshot~Dec 2023 – ~Apr 2024 · 4 months · monthly snapshot~Apr 2024 – ~Jul 2024 · 3 months · monthly snapshot~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshot~Sep 2024 – ~Mar 2025 · 6 months · monthly snapshot~Mar 2025 – ~Feb 2026 · 11 months · monthly snapshot~Feb 2026 – present · 5 months · monthly snapshot

Change History

20 versions recorded

  1. Feb 2026 — Present [monthly]

    Completed

  2. Mar 2025 — Feb 2026 [monthly]

    Completed

    Status: Recruiting → Completed

  3. Sep 2024 — Mar 2025 [monthly]

    Recruiting

  4. Jul 2024 — Sep 2024 [monthly]

    Recruiting

  5. Apr 2024 — Jul 2024 [monthly]

    Recruiting

▶ Show 15 earlier versions

  1. Dec 2023 — Apr 2024 [monthly]

    Recruiting

  2. Apr 2023 — Dec 2023 [monthly]

    Recruiting

  3. Jan 2023 — Apr 2023 [monthly]

    Recruiting

  4. Jan 2022 — Jan 2023 [monthly]

    Recruiting

  5. Jan 2021 — Jan 2022 [monthly]

    Recruiting

  6. Jul 2020 — Jan 2021 [monthly]

    Recruiting

    Status: Active Not Recruiting → Recruiting

  7. Jun 2020 — Jul 2020 [monthly]

    Active Not Recruiting

    Status: Recruiting → Active Not Recruiting

  8. May 2019 — Jun 2020 [monthly]

    Recruiting

  9. Jun 2018 — May 2019 [monthly]

    Recruiting

  10. Apr 2018 — Jun 2018 [monthly]

    Recruiting

    Phase: NA → None

  11. Feb 2018 — Apr 2018 [monthly]

    Recruiting NA

    Status: Active Not Recruiting → Recruiting

  12. May 2017 — Feb 2018 [monthly]

    Active Not Recruiting NA

  13. Mar 2017 — May 2017 [monthly]

    Active Not Recruiting NA

  14. Feb 2017 — Mar 2017 [monthly]

    Active Not Recruiting NA

    Status: Recruiting → Active Not Recruiting

  15. Jan 2017 — Feb 2017 [monthly]

    Recruiting NA

    First recorded

Oct 2004

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • Alexion Pharmaceuticals, Inc.
Data source: Alexion Pharmaceuticals, Inc.

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations