Decision Support for Parents Receiving Information About Child's Rare Disease (DSD DST)
Sponsor: Patient-Centered Outcomes Research Institute
A observational or N/A phase clinical study on Congenital Adrenal Hyperplasia and Disorder of Sex Development, this trial is completed. The trial is conducted by Patient-Centered Outcomes Research Institute and has accumulated 9 data snapshots since 2013. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.
Status Flow
Change History
9 versions recorded-
Sep 2024 — Present [monthly]
Completed
-
Jul 2024 — Sep 2024 [monthly]
Completed
-
Jun 2024 — Jul 2024 [monthly]
Completed
-
Jan 2021 — Jun 2024 [monthly]
Completed
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Jun 2018 — Jan 2021 [monthly]
Completed
▶ Show 4 earlier versions
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Apr 2018 — Jun 2018 [monthly]
Completed
Phase: NA → None
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Mar 2018 — Apr 2018 [monthly]
Completed NA
Status: Active Not Recruiting → Completed
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Jul 2017 — Mar 2018 [monthly]
Active Not Recruiting NA
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Jan 2017 — Jul 2017 [monthly]
Active Not Recruiting NA
First recorded
Jun 2013
Trial started
Per CT.gov start date — pre-dates our first snapshot
Eligibility Summary
No eligibility information available.
Contact Information
- Patient-Centered Outcomes Research Institute
- Seattle Children's Hospital
- Temple University
- University of California, Los Angeles
- University of Michigan
- Virginia Commonwealth University
For direct contact, visit the study record on ClinicalTrials.gov .