Recruiting OBSERVATIONAL NCT02321423

International Pachyonychia Congenita Research Registry (IPCRR)

Sponsor: Pachyonychia Congenita Project

Updated 7 times since 2017 Last updated: Nov 19, 2018 Started: Apr 30, 2004 Primary completion: Dec 31, 2030 Completion: Dec 31, 2030

This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

Listed as NCT02321423, this observational or N/A phase trial focuses on Pachyonychia Congenita and remains actively recruiting participants. Sponsored by Pachyonychia Congenita Project, it has been updated 7 times since 2004, reflecting limited change activity. This study adds to the evidence base for this therapeutic area through structured, versioned documentation.

Status Flow

Change History

7 versions recorded

Sep 2024 — Present [monthly]

Recruiting
Jul 2024 — Sep 2024 [monthly]

Recruiting
Jan 2021 — Jul 2024 [monthly]

Recruiting
Dec 2018 — Jan 2021 [monthly]

Recruiting
Jun 2018 — Dec 2018 [monthly]

Recruiting

▶ Show 2 earlier versions

Apr 2018 — Jun 2018 [monthly]

Recruiting

Phase: NA → None
Jan 2017 — Apr 2018 [monthly]

Recruiting NA

First recorded

Apr 2004

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:

Pachyonychia Congenita Project

Data source: Pachyonychia Congenita Project

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations

• Salt Lake City, United States