Myotonic Dystrophy Family Registry (MDFR)
Sponsor: Myotonic Dystrophy Foundation
A observational or N/A phase clinical study on Congenital Myotonic Dystrophy and Dystrophia Myotonica, this trial is actively recruiting participants. The trial is conducted by Myotonic Dystrophy Foundation and has accumulated 13 data snapshots since 2013. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.
Status Flow
Change History
13 versions recorded-
Dec 2024 — Present [monthly]
Recruiting
-
Sep 2024 — Dec 2024 [monthly]
Recruiting
-
Jul 2024 — Sep 2024 [monthly]
Recruiting
-
Oct 2023 — Jul 2024 [monthly]
Recruiting
-
Dec 2022 — Oct 2023 [monthly]
Recruiting
Status: Unknown Status → Recruiting
▶ Show 8 earlier versions
-
Jul 2022 — Dec 2022 [monthly]
Unknown Status
Status: Recruiting → Unknown Status
-
Jan 2021 — Jul 2022 [monthly]
Recruiting
-
Jul 2020 — Jan 2021 [monthly]
Recruiting
-
May 2020 — Jul 2020 [monthly]
Recruiting
-
Oct 2018 — May 2020 [monthly]
Recruiting
-
Jun 2018 — Oct 2018 [monthly]
Recruiting
-
Apr 2018 — Jun 2018 [monthly]
Recruiting
Phase: NA → None
-
Jan 2017 — Apr 2018 [monthly]
Recruiting NA
First recorded
Feb 2013
Trial started
Per CT.gov start date — pre-dates our first snapshot
Eligibility Summary
No eligibility information available.
Contact Information
- Myotonic Dystrophy Foundation
For direct contact, visit the study record on ClinicalTrials.gov .