deltatrials
Recruiting OBSERVATIONAL NCT02419365

International Primary Ciliary Dyskinesia (PCD) Registry (PCDregistry)

International Prospective Primary Ciliary Dyskinesia (PCD) Registry for Systematic Data Collection on Incidence, Clinical Presentation, Treatment and Course of the Disease

Sponsor: Amsterdam UMC, location VUmc

Updated 11 times since 2017 Last updated: Nov 25, 2022 Started: Jan 31, 2014 Primary completion: Dec 31, 2030 Completion: Dec 31, 2030
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

This observational or N/A phase trial investigates Primary Ciliary Dyskinesia (PCD) and is currently actively recruiting participants. Amsterdam UMC, location VUmc leads this study, which shows 11 recorded versions since 2014 — indicating substantial longitudinal coverage. The change history captured here reflects the iterative nature of clinical trial conduct.

Status Flow

~Jan 2017 – ~Apr 2018 · 15 months · monthly snapshotRecruiting~Apr 2018 – ~Jun 2018 · 2 months · monthly snapshotRecruiting~Jun 2018 – ~Aug 2019 · 14 months · monthly snapshotRecruiting~Aug 2019 – ~Jan 2021 · 17 months · monthly snapshotRecruiting~Jan 2021 – ~Feb 2021 · 31 days · monthly snapshotRecruiting~Feb 2021 – ~May 2022 · 15 months · monthly snapshotRecruiting~May 2022 – ~Dec 2022 · 7 months · monthly snapshotRecruiting~Dec 2022 – ~Jul 2024 · 19 months · monthly snapshotRecruiting~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshotRecruiting~Sep 2024 – ~Sep 2025 · 12 months · monthly snapshotRecruiting~Sep 2025 – present · 10 months · monthly snapshotRecruiting

Change History

11 versions recorded
  1. Sep 2025 — Present [monthly]

    Recruiting

  2. Sep 2024 — Sep 2025 [monthly]

    Recruiting

  3. Jul 2024 — Sep 2024 [monthly]

    Recruiting

  4. Dec 2022 — Jul 2024 [monthly]

    Recruiting

  5. May 2022 — Dec 2022 [monthly]

    Recruiting

Show 6 earlier versions
  1. Feb 2021 — May 2022 [monthly]

    Recruiting

  2. Jan 2021 — Feb 2021 [monthly]

    Recruiting

  3. Aug 2019 — Jan 2021 [monthly]

    Recruiting

  4. Jun 2018 — Aug 2019 [monthly]

    Recruiting

  5. Apr 2018 — Jun 2018 [monthly]

    Recruiting

    Phase: NANone

  6. Jan 2017 — Apr 2018 [monthly]

    Recruiting NA

    First recorded

Jan 2014

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • Amsterdam UMC, location VUmc
  • Assistance Publique - Hôpitaux de Paris
  • Attikon Hospital
  • European Commission
  • Federico II University
  • Hannover Medical School
  • Hospital Vall d'Hebron
  • KU Leuven
  • Marmara University
  • Medical University of Vienna
  • Rigshospitalet, Denmark
  • Royal Brompton & Harefield NHS Foundation Trust
  • Ruhr University of Bochum
  • University Hospital Muenster
  • University Hospital, Martin
  • University of Alberta
  • University of Bern
  • University of Giessen
  • University of Nicosia
  • University of North Carolina
  • University of Pisa
  • University of Southampton
Data source: University Hospital Muenster

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations