Completed OBSERVATIONAL NCT02574676

Quality of Life (QOL) Registry for Patients With AL Amyloidosis

Prospective Observational Study Measuring the Short-Form36 ( SF-36v2) and Other QOL Tools in an AL Amyloidosis Population

Sponsor: Amyloidosis Foundation

Conditions AL Amyloidosis Amyloidosis

Interventions non-interventional

Updated 8 times since 2017 Last updated: Apr 7, 2019 Started: Oct 31, 2015 Primary completion: Jul 31, 2018 Completion: Jul 31, 2018

This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

A observational or N/A phase clinical study on AL Amyloidosis and Amyloidosis, this trial is completed. The trial is conducted by Amyloidosis Foundation and has accumulated 8 data snapshots since 2015. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.

Status Flow

Change History

8 versions recorded

Sep 2024 — Present [monthly]

Completed
Jul 2024 — Sep 2024 [monthly]

Completed
Oct 2021 — Jul 2024 [monthly]

Completed
Jan 2021 — Oct 2021 [monthly]

Completed
May 2019 — Jan 2021 [monthly]

Completed

Status: Active Not Recruiting → Completed

▶ Show 3 earlier versions

Jun 2018 — May 2019 [monthly]

Active Not Recruiting
Apr 2018 — Jun 2018 [monthly]

Active Not Recruiting

Phase: NA → None
Jan 2017 — Apr 2018 [monthly]

Active Not Recruiting NA

First recorded

Oct 2015

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:

Amyloidosis Foundation
Amyloidosis Research Consortium
Amyloidosis Support Groups
Prothena Biosciences Ltd.
Quality Metrics

Data source: Prothena Biosciences Ltd.

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations

• South San Francisco, United States