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Recruiting OBSERVATIONAL NCT02964494

The Congenital Dyserythropoietic Anemia Registry (CDAR)

Sponsor: Children's Hospital Medical Center, Cincinnati

Conditions Congenital Dyserythropoietic Anemia (CDA)
Updated 16 times since 2017 Last updated: May 13, 2025 Started: Aug 29, 2016 Primary completion: Jul 31, 2026 Completion: Jan 31, 2031
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

Listed as NCT02964494, this observational or N/A phase trial focuses on Congenital Dyserythropoietic Anemia (CDA) and remains actively recruiting participants. Sponsored by Children's Hospital Medical Center, Cincinnati, it has been updated 16 times since 2016, reflecting substantial change activity. This study adds to the evidence base for this therapeutic area through structured, versioned documentation.

Status Flow

~Jan 2017 – ~Aug 2017 · 7 months · monthly snapshot~Aug 2017 – ~Apr 2018 · 8 months · monthly snapshot~Apr 2018 – ~May 2018 · 30 days · monthly snapshot~May 2018 – ~Jun 2018 · 31 days · monthly snapshot~Jun 2018 – ~Jan 2019 · 7 months · monthly snapshot~Jan 2019 – ~Feb 2020 · 13 months · monthly snapshot~Feb 2020 – ~Nov 2020 · 9 months · monthly snapshot~Nov 2020 – ~Jan 2021 · 2 months · monthly snapshot~Jan 2021 – ~Mar 2021 · 59 days · monthly snapshot~Mar 2021 – ~Dec 2021 · 9 months · monthly snapshot~Dec 2021 – ~Dec 2022 · 12 months · monthly snapshot~Dec 2022 – ~Feb 2024 · 14 months · monthly snapshot~Feb 2024 – ~Jul 2024 · 5 months · monthly snapshot~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshot~Sep 2024 – ~Jun 2025 · 9 months · monthly snapshot~Jun 2025 – present · 15 months · monthly snapshot

Change History

16 versions recorded

  1. Jun 2025 — Present [monthly]

    Recruiting

  2. Sep 2024 — Jun 2025 [monthly]

    Recruiting

  3. Jul 2024 — Sep 2024 [monthly]

    Recruiting

  4. Feb 2024 — Jul 2024 [monthly]

    Recruiting

  5. Dec 2022 — Feb 2024 [monthly]

    Recruiting

▶ Show 11 earlier versions

  1. Dec 2021 — Dec 2022 [monthly]

    Recruiting

  2. Mar 2021 — Dec 2021 [monthly]

    Recruiting

  3. Jan 2021 — Mar 2021 [monthly]

    Recruiting

  4. Nov 2020 — Jan 2021 [monthly]

    Recruiting

  5. Feb 2020 — Nov 2020 [monthly]

    Recruiting

  6. Jan 2019 — Feb 2020 [monthly]

    Recruiting

  7. Jun 2018 — Jan 2019 [monthly]

    Recruiting

  8. May 2018 — Jun 2018 [monthly]

    Recruiting

  9. Apr 2018 — May 2018 [monthly]

    Recruiting

    Phase: NA → None

  10. Aug 2017 — Apr 2018 [monthly]

    Recruiting NA

  11. Jan 2017 — Aug 2017 [monthly]

    Recruiting NA

    First recorded

Aug 2016

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • Children's Hospital Medical Center, Cincinnati
Data source: Children's Hospital Medical Center, Cincinnati

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations