deltatrials
Completed OBSERVATIONAL NCT03293810

Glybera Registry, Lipoprotein Lipase Deficient (LPLD) Patients (GENIALL)

Glybera Registry, Long-term Safety and Efficacy Follow-up in Lipoprotein Lipase Deficient (LPLD) Patients Treated With Alipogene Tiparvovec (GLYBERA®)

Sponsor: UniQure Biopharma B.V.

Interventions Observational study
Updated 13 times since 2017 Last updated: Nov 23, 2023 Started: Jun 27, 2014 Primary completion: Jun 30, 2023 Completion: Jun 30, 2023
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

Listed as NCT03293810, this observational or N/A phase trial focuses on Familial Hyperchylomicronemia and Familial Hyperlipoproteinemia Type 1 and remains completed. Sponsored by UniQure Biopharma B.V., it has been updated 13 times since 2014, reflecting substantial change activity. This study adds to the evidence base for this therapeutic area through structured, versioned documentation.

Status Flow

~Oct 2017 – ~Mar 2018 · 5 months · monthly snapshot~Mar 2018 – ~Apr 2018 · 31 days · monthly snapshot~Apr 2018 – ~Jun 2018 · 2 months · monthly snapshot~Jun 2018 – ~Mar 2019 · 9 months · monthly snapshot~Mar 2019 – ~Feb 2020 · 11 months · monthly snapshot~Feb 2020 – ~Jan 2021 · 11 months · monthly snapshot~Jan 2021 – ~Feb 2021 · 31 days · monthly snapshot~Feb 2021 – ~May 2021 · 3 months · monthly snapshot~May 2021 – ~Jun 2022 · 13 months · monthly snapshot~Jun 2022 – ~Dec 2023 · 18 months · monthly snapshot~Dec 2023 – ~Jul 2024 · 7 months · monthly snapshot~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshot~Sep 2024 – present · 22 months · monthly snapshot

Change History

13 versions recorded
  1. Sep 2024 — Present [monthly]

    Completed

  2. Jul 2024 — Sep 2024 [monthly]

    Completed

  3. Dec 2023 — Jul 2024 [monthly]

    Completed

    Status: Active Not RecruitingCompleted

  4. Jun 2022 — Dec 2023 [monthly]

    Active Not Recruiting

  5. May 2021 — Jun 2022 [monthly]

    Active Not Recruiting

Show 8 earlier versions
  1. Feb 2021 — May 2021 [monthly]

    Active Not Recruiting

  2. Jan 2021 — Feb 2021 [monthly]

    Active Not Recruiting

  3. Feb 2020 — Jan 2021 [monthly]

    Active Not Recruiting

  4. Mar 2019 — Feb 2020 [monthly]

    Active Not Recruiting

  5. Jun 2018 — Mar 2019 [monthly]

    Active Not Recruiting

  6. Apr 2018 — Jun 2018 [monthly]

    Active Not Recruiting

    Phase: NANone

  7. Mar 2018 — Apr 2018 [monthly]

    Active Not Recruiting NA

    Status: RecruitingActive Not Recruiting

  8. Oct 2017 — Mar 2018 [monthly]

    Recruiting NA

    First recorded

Jun 2014

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • UniQure Biopharma B.V.
Data source: UniQure Biopharma B.V.

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations