deltatrials
Recruiting OBSERVATIONAL NCT03333200

Longitudinal Study of Neurodegenerative Disorders

Sponsor: University of Pittsburgh

Conditions ALD Alpha-Mannosidosis Batten Disease GAN GM1 Gangliosidoses GM3 Gangliosidosis Gaucher Disease Krabbe Disease Leukodystrophy Lysosomal Storage Diseases MLD MPS I MPS II MPS III MPS IV Morquio Disease Multiple Sulfatase Deficiency Disease NP Deficiency Niemann-Pick Diseases Osteopetrosis PKAN Pelizaeus-Merzbacher Disease Purine Nucleoside Phosphorylase Deficiency S-Adenosylhomocysteine Hydrolase Deficiency Sandhoff Disease Tay-Sachs Disease Vanishing White Matter Disease
Interventions Hematopoetic Stem Cell Transplantation Palliative Care
Updated 16 times since 2017 Last updated: Feb 4, 2026 Started: Jan 11, 2012 Primary completion: Jan 31, 2030 Completion: Jan 31, 2035
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

Listed as NCT03333200, this observational or N/A phase trial focuses on ALD and Alpha-Mannosidosis and remains actively recruiting participants. Sponsored by University of Pittsburgh, it has been updated 16 times since 2012, reflecting substantial change activity. This study adds to the evidence base for this therapeutic area through structured, versioned documentation.

Status Flow

~Dec 2017 – ~Apr 2018 · 4 months · monthly snapshot~Apr 2018 – ~May 2018 · 30 days · monthly snapshot~May 2018 – ~Jun 2018 · 31 days · monthly snapshot~Jun 2018 – ~Jan 2019 · 7 months · monthly snapshot~Jan 2019 – ~Dec 2019 · 11 months · monthly snapshot~Dec 2019 – ~Nov 2020 · 11 months · monthly snapshot~Nov 2020 – ~Dec 2020 · 30 days · monthly snapshot~Dec 2020 – ~Jan 2021 · 31 days · monthly snapshot~Jan 2021 – ~Dec 2021 · 11 months · monthly snapshot~Dec 2021 – ~Apr 2024 · 28 months · monthly snapshot~Apr 2024 – ~May 2024 · 30 days · monthly snapshot~May 2024 – ~Jul 2024 · 2 months · monthly snapshot~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshot~Sep 2024 – ~Apr 2025 · 7 months · monthly snapshot~Apr 2025 – ~Feb 2026 · 10 months · monthly snapshot~Feb 2026 – present · 4 months · monthly snapshot

Change History

16 versions recorded

  1. Feb 2026 — Present [monthly]

    Recruiting

  2. Apr 2025 — Feb 2026 [monthly]

    Recruiting

  3. Sep 2024 — Apr 2025 [monthly]

    Recruiting

  4. Jul 2024 — Sep 2024 [monthly]

    Recruiting

  5. May 2024 — Jul 2024 [monthly]

    Recruiting

▶ Show 11 earlier versions

  1. Apr 2024 — May 2024 [monthly]

    Recruiting

  2. Dec 2021 — Apr 2024 [monthly]

    Recruiting

  3. Jan 2021 — Dec 2021 [monthly]

    Recruiting

  4. Dec 2020 — Jan 2021 [monthly]

    Recruiting

  5. Nov 2020 — Dec 2020 [monthly]

    Recruiting

  6. Dec 2019 — Nov 2020 [monthly]

    Recruiting

  7. Jan 2019 — Dec 2019 [monthly]

    Recruiting

  8. Jun 2018 — Jan 2019 [monthly]

    Recruiting

  9. May 2018 — Jun 2018 [monthly]

    Recruiting

  10. Apr 2018 — May 2018 [monthly]

    Recruiting

    Phase: NA → None

  11. Dec 2017 — Apr 2018 [monthly]

    Recruiting NA

    First recorded

Jan 2012

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • University of Pittsburgh
Data source: University of Pittsburgh

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations