deltatrials
Recruiting OBSERVATIONAL NCT03362164

Evaluation of HEArt invoLvement in Patients With FABRY Disease (HEAL-FABRY)

Prospective Monocentric Cohort Study to Evaluate Predictors for Heart Failure and Sudden Cardiac Death in Patients With Fabry Disease

Sponsor: Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA)

Updated 12 times since 2017 Last updated: Jul 6, 2022 Started: Jan 31, 2001 Primary completion: Mar 31, 2032 Completion: Mar 31, 2032
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

A observational or N/A phase clinical study on Fabry Disease and Fabry Disease, Cardiac Variant, this trial is actively recruiting participants. The trial is conducted by Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA) and has accumulated 12 data snapshots since 2001. Cardiovascular trials of this type often inform treatment guidelines for long-term patient management.

Status Flow

~Dec 2017 – ~Apr 2018 · 4 months · monthly snapshotRecruiting~Apr 2018 – ~May 2018 · 30 days · monthly snapshotRecruiting~May 2018 – ~Jun 2018 · 31 days · monthly snapshotRecruiting~Jun 2018 – ~Jan 2020 · 19 months · monthly snapshotRecruiting~Jan 2020 – ~Mar 2020 · 2 months · monthly snapshotRecruiting~Mar 2020 – ~Nov 2020 · 8 months · monthly snapshotRecruiting~Nov 2020 – ~Jan 2021 · 2 months · monthly snapshotRecruiting~Jan 2021 – ~Dec 2021 · 11 months · monthly snapshotRecruiting~Dec 2021 – ~Sep 2022 · 9 months · monthly snapshotRecruiting~Sep 2022 – ~Jul 2024 · 22 months · monthly snapshotRecruiting~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshotRecruiting~Sep 2024 – present · 22 months · monthly snapshotRecruiting

Change History

12 versions recorded
  1. Sep 2024 — Present [monthly]

    Recruiting

  2. Jul 2024 — Sep 2024 [monthly]

    Recruiting

  3. Sep 2022 — Jul 2024 [monthly]

    Recruiting

  4. Dec 2021 — Sep 2022 [monthly]

    Recruiting

  5. Jan 2021 — Dec 2021 [monthly]

    Recruiting

Show 7 earlier versions
  1. Nov 2020 — Jan 2021 [monthly]

    Recruiting

  2. Mar 2020 — Nov 2020 [monthly]

    Recruiting

  3. Jan 2020 — Mar 2020 [monthly]

    Recruiting

  4. Jun 2018 — Jan 2020 [monthly]

    Recruiting

  5. May 2018 — Jun 2018 [monthly]

    Recruiting

  6. Apr 2018 — May 2018 [monthly]

    Recruiting

    Phase: NANone

  7. Dec 2017 — Apr 2018 [monthly]

    Recruiting NA

    First recorded

Jan 2001

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA)
  • Competence Network Heart Failure
  • St George's, University of London
  • Wuerzburg University Hospital
Data source: Wuerzburg University Hospital

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations