deltatrials
Unknown OBSERVATIONAL NCT03446586

Hereditary Hepatorenal Tyrosinemia Natural History in Egypt and the Arab World (Multicenter Clinical Study)

Hereditary Hepatorenal Tyrosinemia Natural History (Multicenter Clinical Study): Registry for Patients With Tyrosinemia Type I in Egypt and the Arab World

Sponsor: Society of Friends of Liver Patients in the Arab World (SLPAW)

Updated 13 times since 2018 Last updated: Jan 9, 2019 Started: Apr 5, 2019 Primary completion: Nov 5, 2023 Completion: Dec 31, 2023
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

This observational or N/A phase trial investigates Hereditary Tyrosinemia, Type I and is currently ongoing. Society of Friends of Liver Patients in the Arab World (SLPAW) leads this study, which shows 13 recorded versions since 2019 — indicating substantial longitudinal coverage. The change history captured here reflects the iterative nature of clinical trial conduct.

Status Flow

~Mar 2018 – ~Apr 2018 · 31 days · monthly snapshot~Apr 2018 – ~May 2018 · 30 days · monthly snapshot~May 2018 – ~Jun 2018 · 31 days · monthly snapshot~Jun 2018 – ~Jul 2018 · 30 days · monthly snapshot~Jul 2018 – ~Feb 2019 · 7 months · monthly snapshot~Feb 2019 – ~Nov 2020 · 21 months · monthly snapshot~Nov 2020 – ~Jan 2021 · 2 months · monthly snapshot~Jan 2021 – ~Dec 2021 · 11 months · monthly snapshot~Dec 2021 – ~Feb 2024 · 26 months · monthly snapshot~Feb 2024 – ~Jul 2024 · 5 months · monthly snapshot~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshot~Sep 2024 – ~Sep 2025 · 12 months · monthly snapshot~Sep 2025 – present · 10 months · monthly snapshot

Change History

13 versions recorded
  1. Sep 2025 — Present [monthly]

    Unknown

  2. Sep 2024 — Sep 2025 [monthly]

    Unknown

  3. Jul 2024 — Sep 2024 [monthly]

    Unknown

    Status: Unknown StatusUnknown

  4. Feb 2024 — Jul 2024 [monthly]

    Unknown Status

    Status: RecruitingUnknown Status

  5. Dec 2021 — Feb 2024 [monthly]

    Recruiting

Show 8 earlier versions
  1. Jan 2021 — Dec 2021 [monthly]

    Recruiting

  2. Nov 2020 — Jan 2021 [monthly]

    Recruiting

  3. Feb 2019 — Nov 2020 [monthly]

    Recruiting

  4. Jul 2018 — Feb 2019 [monthly]

    Recruiting

  5. Jun 2018 — Jul 2018 [monthly]

    Recruiting

  6. May 2018 — Jun 2018 [monthly]

    Recruiting

  7. Apr 2018 — May 2018 [monthly]

    Recruiting

    Phase: NANone

  8. Mar 2018 — Apr 2018 [monthly]

    Recruiting NA

    First recorded

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • Society of Friends of Liver Patients in the Arab World (SLPAW)
  • Yassin Abdelghaffar Charity Center for Liver Disease and Research
Data source: Yassin Abdelghaffar Charity Center for Liver Disease and Research

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations