deltatrials
Recruiting OBSERVATIONAL NCT03492060

Longitudinal Study of Neurogenetic Disorders

Neurogenetic Disorders: A Longitudinal Study on Natural History and Intervention Strategies

Sponsor: Columbia University

Updated 16 times since 2018 Last updated: Oct 24, 2025 Started: Jun 13, 2018 Primary completion: Dec 31, 2030 Completion: Dec 31, 2030
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

This observational or N/A phase trial investigates Autism Spectrum Disorder and Developmental Delay and is currently actively recruiting participants. Columbia University leads this study, which shows 16 recorded versions since 2018 — indicating substantial longitudinal coverage. This study adds to the longitudinal dataset for psychiatric treatment development.

Status Flow

~May 2018 – ~Jun 2018 · 31 days · monthly snapshot~Jun 2018 – ~Aug 2018 · 2 months · monthly snapshot~Aug 2018 – ~Oct 2018 · 2 months · monthly snapshot~Oct 2018 – ~Jul 2019 · 9 months · monthly snapshot~Jul 2019 – ~Sep 2019 · 2 months · monthly snapshot~Sep 2019 – ~Oct 2020 · 13 months · monthly snapshot~Oct 2020 – ~Nov 2020 · 31 days · monthly snapshot~Nov 2020 – ~Jan 2021 · 2 months · monthly snapshot~Jan 2021 – ~Nov 2021 · 10 months · monthly snapshot~Nov 2021 – ~Dec 2021 · 30 days · monthly snapshot~Dec 2021 – ~Dec 2022 · 12 months · monthly snapshot~Dec 2022 – ~Jul 2024 · 19 months · monthly snapshot~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshot~Sep 2024 – ~Nov 2024 · 2 months · monthly snapshot~Nov 2024 – ~Nov 2025 · 12 months · monthly snapshot~Nov 2025 – present · 9 months · monthly snapshot

Change History

16 versions recorded
  1. Nov 2025 — Present [monthly]

    Recruiting

  2. Nov 2024 — Nov 2025 [monthly]

    Recruiting

  3. Sep 2024 — Nov 2024 [monthly]

    Recruiting

  4. Jul 2024 — Sep 2024 [monthly]

    Recruiting

  5. Dec 2022 — Jul 2024 [monthly]

    Recruiting

Show 11 earlier versions
  1. Dec 2021 — Dec 2022 [monthly]

    Recruiting

  2. Nov 2021 — Dec 2021 [monthly]

    Recruiting

  3. Jan 2021 — Nov 2021 [monthly]

    Recruiting

  4. Nov 2020 — Jan 2021 [monthly]

    Recruiting

  5. Oct 2020 — Nov 2020 [monthly]

    Recruiting

  6. Sep 2019 — Oct 2020 [monthly]

    Recruiting

  7. Jul 2019 — Sep 2019 [monthly]

    Recruiting

  8. Oct 2018 — Jul 2019 [monthly]

    Recruiting

  9. Aug 2018 — Oct 2018 [monthly]

    Recruiting

  10. Jun 2018 — Aug 2018 [monthly]

    Recruiting

    Status: Not Yet RecruitingRecruiting

  11. May 2018 — Jun 2018 [monthly]

    Not Yet Recruiting

    First recorded

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • Columbia University
  • Hackensack Meridian Health
  • New York University
  • Simons Foundation
  • Universitätsklinikum Hamburg-Eppendorf
Data source: Columbia University

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations