International Primary Ciliary Dyskinesia Cohort (iPCD)
Sponsor: Amsterdam UMC, location VUmc
Listed as NCT03517865, this observational or N/A phase trial focuses on Kartagener Syndrome and Primary Ciliary Dyskinesia and remains ongoing. Sponsored by Amsterdam UMC, location VUmc, it has been updated 12 times since 2013, reflecting substantial change activity. This study adds to the evidence base for this therapeutic area through structured, versioned documentation.
Status Flow
Change History
12 versions recorded-
Dec 2025 — Present [monthly]
Active Not Recruiting
Status: Recruiting → Active Not Recruiting
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Jan 2025 — Dec 2025 [monthly]
Recruiting
-
Sep 2024 — Jan 2025 [monthly]
Recruiting
-
Jul 2024 — Sep 2024 [monthly]
Recruiting
-
Dec 2023 — Jul 2024 [monthly]
Recruiting
▶ Show 7 earlier versions
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Dec 2022 — Dec 2023 [monthly]
Recruiting
-
May 2022 — Dec 2022 [monthly]
Recruiting
-
Oct 2021 — May 2022 [monthly]
Recruiting
-
Jan 2021 — Oct 2021 [monthly]
Recruiting
-
Jun 2020 — Jan 2021 [monthly]
Recruiting
-
Jun 2019 — Jun 2020 [monthly]
Recruiting
-
Jun 2018 — Jun 2019 [monthly]
Recruiting
First recorded
Jan 2013
Trial started
Per CT.gov start date — pre-dates our first snapshot
Eligibility Summary
No eligibility information available.
Contact Information
- Amsterdam UMC, location VUmc
- Attikon Hospital
- Bar-Ilan University, Israel
- Clinica de neumologia pediatrica Compensar
- Copenhagen University Hospital, Denmark
- European Commission
- Genetic Disorders of Mucociliary Clearance Consortium
- Hacettepe University
- Hannover Medical School
- Hospital de Niños R. Gutierrez de Buenos Aires
- Institute of Tuberculosis and Lung Disorders, Rabka Poland
- Marmara University
- Medical Centre Dr Dragisa Misovic
- Oslo University Hospital
- Pierre and Marie Curie University
- Royal Brompton & Harefield NHS Foundation Trust
- Ruhr University of Bochum
- Swiss National Science Foundation
- University Hospital Muenster
- University Hospital, Gasthuisberg
- University Hospital, Motol
- University of Bern
- University of Cyprus
- University of Leicester
- University of Padova
- University of Southampton
- University of Sydney
For direct contact, visit the study record on ClinicalTrials.gov .