deltatrials
Active Not Recruiting OBSERVATIONAL NCT03651505

X-linked Hypophosphatemia Disease Monitoring Program

X-linked Hypophosphatemia Disease Monitoring Program (XLH-DMP)

Sponsor: Kyowa Kirin Co., Ltd.

Interventions No intervention
Updated 62 times since 2018 Last updated: Feb 12, 2026 Started: Jul 16, 2018 Primary completion: Dec 31, 2032 Completion: Dec 31, 2032
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

A observational or N/A phase clinical study on Hypophosphatemic Rickets and X-linked Hypophosphatemia, this trial is ongoing. The trial is conducted by Kyowa Kirin Co., Ltd. and has accumulated 62 data snapshots since 2018. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.

Status Flow

~Sep 2018 – ~Oct 2018 · 30 days · monthly snapshot~Oct 2018 – ~Nov 2018 · 31 days · monthly snapshot~Nov 2018 – ~Dec 2018 · 30 days · monthly snapshot~Dec 2018 – ~Jan 2019 · 31 days · monthly snapshot~Jan 2019 – ~Feb 2019 · 31 days · monthly snapshot~Feb 2019 – ~Mar 2019 · 28 days · monthly snapshot~Mar 2019 – ~Apr 2019 · 31 days · monthly snapshot~Apr 2019 – ~May 2019 · 30 days · monthly snapshot~May 2019 – ~Jun 2019 · 31 days · monthly snapshot~Jun 2019 – ~Jul 2019 · 30 days · monthly snapshot~Jul 2019 – ~Aug 2019 · 31 days · monthly snapshot~Aug 2019 – ~Sep 2019 · 31 days · monthly snapshot~Sep 2019 – ~Oct 2019 · 30 days · monthly snapshot~Oct 2019 – ~Nov 2019 · 31 days · monthly snapshot~Nov 2019 – ~Dec 2019 · 30 days · monthly snapshot~Dec 2019 – ~Jan 2020 · 31 days · monthly snapshot~Jan 2020 – ~Feb 2020 · 31 days · monthly snapshot~Feb 2020 – ~Mar 2020 · 29 days · monthly snapshot~Mar 2020 – ~Apr 2020 · 31 days · monthly snapshot~Apr 2020 – ~May 2020 · 30 days · monthly snapshot~May 2020 – ~Jul 2020 · 2 months · monthly snapshot~Jul 2020 – ~Aug 2020 · 31 days · monthly snapshot~Aug 2020 – ~Sep 2020 · 31 days · monthly snapshot~Sep 2020 – ~Oct 2020 · 30 days · monthly snapshot~Oct 2020 – ~Nov 2020 · 31 days · monthly snapshot~Nov 2020 – ~Dec 2020 · 30 days · monthly snapshot~Dec 2020 – ~Jan 2021 · 31 days · monthly snapshot~Jan 2021 – ~Feb 2021 · 31 days · monthly snapshot~Feb 2021 – ~Mar 2021 · 28 days · monthly snapshot~Mar 2021 – ~Apr 2021 · 31 days · monthly snapshot~Apr 2021 – ~May 2021 · 30 days · monthly snapshot~May 2021 – ~Jun 2021 · 31 days · monthly snapshot~Jun 2021 – ~Sep 2021 · 3 months · monthly snapshot~Sep 2021 – ~Oct 2021 · 30 days · monthly snapshot~Oct 2021 – ~Nov 2021 · 31 days · monthly snapshot~Nov 2021 – ~Dec 2021 · 30 days · monthly snapshot~Dec 2021 – ~Jan 2022 · 31 days · monthly snapshot~Jan 2022 – ~Feb 2022 · 31 days · monthly snapshot~Feb 2022 – ~Mar 2022 · 28 days · monthly snapshot~Mar 2022 – ~Apr 2022 · 31 days · monthly snapshot~Apr 2022 – ~May 2022 · 30 days · monthly snapshot~May 2022 – ~Jun 2022 · 31 days · monthly snapshot~Jun 2022 – ~Jul 2022 · 30 days · monthly snapshot~Jul 2022 – ~Sep 2022 · 2 months · monthly snapshot~Sep 2022 – ~Nov 2022 · 2 months · monthly snapshot~Nov 2022 – ~Dec 2022 · 30 days · monthly snapshot~Dec 2022 – ~Jan 2023 · 31 days · monthly snapshot~Jan 2023 – ~Apr 2023 · 3 months · monthly snapshot~Apr 2023 – ~Jul 2023 · 3 months · monthly snapshot~Jul 2023 – ~Oct 2023 · 3 months · monthly snapshot~Oct 2023 – ~Dec 2023 · 2 months · monthly snapshot~Dec 2023 – ~Jan 2024 · 31 days · monthly snapshot~Jan 2024 – ~Apr 2024 · 3 months · monthly snapshot~Apr 2024 – ~Jul 2024 · 3 months · monthly snapshot~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshot~Sep 2024 – ~Feb 2025 · 5 months · monthly snapshot~Feb 2025 – ~May 2025 · 3 months · monthly snapshot~May 2025 – ~Aug 2025 · 3 months · monthly snapshot~Aug 2025 – ~Sep 2025 · 31 days · monthly snapshot~Sep 2025 – ~Nov 2025 · 2 months · monthly snapshot~Nov 2025 – ~Feb 2026 · 3 months · monthly snapshot~Feb 2026 – present · 5 months · monthly snapshot

Change History

62 versions recorded
  1. Feb 2026 — Present [monthly]

    Active Not Recruiting

  2. Nov 2025 — Feb 2026 [monthly]

    Active Not Recruiting

  3. Sep 2025 — Nov 2025 [monthly]

    Active Not Recruiting

  4. Aug 2025 — Sep 2025 [monthly]

    Active Not Recruiting

  5. May 2025 — Aug 2025 [monthly]

    Active Not Recruiting

Show 57 earlier versions
  1. Feb 2025 — May 2025 [monthly]

    Active Not Recruiting

  2. Sep 2024 — Feb 2025 [monthly]

    Active Not Recruiting

  3. Jul 2024 — Sep 2024 [monthly]

    Active Not Recruiting

  4. Apr 2024 — Jul 2024 [monthly]

    Active Not Recruiting

  5. Jan 2024 — Apr 2024 [monthly]

    Active Not Recruiting

  6. Dec 2023 — Jan 2024 [monthly]

    Active Not Recruiting

  7. Oct 2023 — Dec 2023 [monthly]

    Active Not Recruiting

  8. Jul 2023 — Oct 2023 [monthly]

    Active Not Recruiting

  9. Apr 2023 — Jul 2023 [monthly]

    Active Not Recruiting

  10. Jan 2023 — Apr 2023 [monthly]

    Active Not Recruiting

    Status: RecruitingActive Not Recruiting

  11. Dec 2022 — Jan 2023 [monthly]

    Recruiting

  12. Nov 2022 — Dec 2022 [monthly]

    Recruiting

  13. Sep 2022 — Nov 2022 [monthly]

    Recruiting

  14. Jul 2022 — Sep 2022 [monthly]

    Recruiting

  15. Jun 2022 — Jul 2022 [monthly]

    Recruiting

  16. May 2022 — Jun 2022 [monthly]

    Recruiting

  17. Apr 2022 — May 2022 [monthly]

    Recruiting

  18. Mar 2022 — Apr 2022 [monthly]

    Recruiting

  19. Feb 2022 — Mar 2022 [monthly]

    Recruiting

  20. Jan 2022 — Feb 2022 [monthly]

    Recruiting

  21. Dec 2021 — Jan 2022 [monthly]

    Recruiting

  22. Nov 2021 — Dec 2021 [monthly]

    Recruiting

  23. Oct 2021 — Nov 2021 [monthly]

    Recruiting

  24. Sep 2021 — Oct 2021 [monthly]

    Recruiting

  25. Jun 2021 — Sep 2021 [monthly]

    Recruiting

  26. May 2021 — Jun 2021 [monthly]

    Recruiting

  27. Apr 2021 — May 2021 [monthly]

    Recruiting

  28. Mar 2021 — Apr 2021 [monthly]

    Recruiting

  29. Feb 2021 — Mar 2021 [monthly]

    Recruiting

  30. Jan 2021 — Feb 2021 [monthly]

    Recruiting

  31. Dec 2020 — Jan 2021 [monthly]

    Recruiting

  32. Nov 2020 — Dec 2020 [monthly]

    Recruiting

  33. Oct 2020 — Nov 2020 [monthly]

    Recruiting

  34. Sep 2020 — Oct 2020 [monthly]

    Recruiting

  35. Aug 2020 — Sep 2020 [monthly]

    Recruiting

  36. Jul 2020 — Aug 2020 [monthly]

    Recruiting

    Status: Active Not RecruitingRecruiting

  37. May 2020 — Jul 2020 [monthly]

    Active Not Recruiting

    Status: RecruitingActive Not Recruiting

  38. Apr 2020 — May 2020 [monthly]

    Recruiting

  39. Mar 2020 — Apr 2020 [monthly]

    Recruiting

  40. Feb 2020 — Mar 2020 [monthly]

    Recruiting

  41. Jan 2020 — Feb 2020 [monthly]

    Recruiting

  42. Dec 2019 — Jan 2020 [monthly]

    Recruiting

  43. Nov 2019 — Dec 2019 [monthly]

    Recruiting

  44. Oct 2019 — Nov 2019 [monthly]

    Recruiting

  45. Sep 2019 — Oct 2019 [monthly]

    Recruiting

  46. Aug 2019 — Sep 2019 [monthly]

    Recruiting

  47. Jul 2019 — Aug 2019 [monthly]

    Recruiting

  48. Jun 2019 — Jul 2019 [monthly]

    Recruiting

  49. May 2019 — Jun 2019 [monthly]

    Recruiting

  50. Apr 2019 — May 2019 [monthly]

    Recruiting

  51. Mar 2019 — Apr 2019 [monthly]

    Recruiting

  52. Feb 2019 — Mar 2019 [monthly]

    Recruiting

  53. Jan 2019 — Feb 2019 [monthly]

    Recruiting

  54. Dec 2018 — Jan 2019 [monthly]

    Recruiting

  55. Nov 2018 — Dec 2018 [monthly]

    Recruiting

  56. Oct 2018 — Nov 2018 [monthly]

    Recruiting

  57. Sep 2018 — Oct 2018 [monthly]

    Recruiting

    First recorded

Jul 2018

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • Kyowa Kirin Co., Ltd.
  • Ultragenyx Pharmaceutical Inc
Data source: Ultragenyx Pharmaceutical Inc

For direct contact, visit the study record on ClinicalTrials.gov .