deltatrials
Unknown OBSERVATIONAL NCT03930628

Limb-Girdle Muscular Dystrophy Type 2I in Norway

Limb-Girdle Muscular Dystrophy Type 2I in Norway - a Cohort Study

Sponsor: Norwegian Competence Center for Sleep Disorders

Updated 13 times since 2019 Last updated: Nov 2, 2022 Started: Jan 6, 2020 Primary completion: Jun 30, 2023 Completion: Jun 30, 2023
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

A observational or N/A phase clinical study on Limb Girdle Muscular Dystrophy and Limb Girdle Muscular Dystrophy R9 FKRP-related, this trial is ongoing. The trial is conducted by Norwegian Competence Center for Sleep Disorders and has accumulated 13 data snapshots since 2020. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.

Status Flow

~May 2019 – ~Jul 2019 · 2 months · monthly snapshot~Jul 2019 – ~Jan 2020 · 6 months · monthly snapshot~Jan 2020 – ~Feb 2020 · 31 days · monthly snapshot~Feb 2020 – ~Sep 2020 · 7 months · monthly snapshot~Sep 2020 – ~Nov 2020 · 2 months · monthly snapshot~Nov 2020 – ~Jan 2021 · 2 months · monthly snapshot~Jan 2021 – ~Oct 2021 · 9 months · monthly snapshot~Oct 2021 – ~Dec 2021 · 2 months · monthly snapshot~Dec 2021 – ~Dec 2022 · 12 months · monthly snapshot~Dec 2022 – ~Jul 2024 · 19 months · monthly snapshot~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshot~Sep 2024 – ~Dec 2024 · 3 months · monthly snapshot~Dec 2024 – present · 19 months · monthly snapshot

Change History

13 versions recorded
  1. Dec 2024 — Present [monthly]

    Unknown

    Status: Active Not RecruitingUnknown

  2. Sep 2024 — Dec 2024 [monthly]

    Active Not Recruiting

  3. Jul 2024 — Sep 2024 [monthly]

    Active Not Recruiting

  4. Dec 2022 — Jul 2024 [monthly]

    Active Not Recruiting

    Status: RecruitingActive Not Recruiting

  5. Dec 2021 — Dec 2022 [monthly]

    Recruiting

Show 8 earlier versions
  1. Oct 2021 — Dec 2021 [monthly]

    Recruiting

  2. Jan 2021 — Oct 2021 [monthly]

    Recruiting

  3. Nov 2020 — Jan 2021 [monthly]

    Recruiting

  4. Sep 2020 — Nov 2020 [monthly]

    Recruiting

  5. Feb 2020 — Sep 2020 [monthly]

    Recruiting

  6. Jan 2020 — Feb 2020 [monthly]

    Recruiting

  7. Jul 2019 — Jan 2020 [monthly]

    Recruiting

    Status: Not Yet RecruitingRecruiting

  8. May 2019 — Jul 2019 [monthly]

    Not Yet Recruiting

    First recorded

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • Norwegian Competence Center for Sleep Disorders
  • Norwegian Muscle Disease Association (FFM)
  • Norwegian National Advisory Unit on Rare Disorders (NKSD)
  • University Hospital of North Norway
  • University of Tromso
Data source: University Hospital of North Norway

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations