deltatrials
Enrolling By Invitation OBSERVATIONAL NCT04189822

Hearts in Rhythm Organization (HiRO)National Registry and Bio Bank (HiRO)

Hearts in Rhythm Organization (HiRO)National Registry and Bio Bank: Improving Detection and Treatment of Inherited Heart Rhythm Disorders to Prevent Sudden Death

Sponsor: Canadian Institutes of Health Research (CIHR)

Updated 8 times since 2020 Last updated: Oct 31, 2022 Started: Aug 27, 2019 Primary completion: Dec 31, 2025 Completion: Dec 31, 2026
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

A observational or N/A phase clinical study on Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC) and Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT), this trial is ongoing. The trial is conducted by Canadian Institutes of Health Research (CIHR) and has accumulated 8 data snapshots since 2019. Cardiovascular trials of this type often inform treatment guidelines for long-term patient management.

Status Flow

~Jan 2020 – ~Nov 2020 · 10 months · monthly snapshotEnrolling By Invitation~Nov 2020 – ~Jan 2021 · 2 months · monthly snapshotEnrolling By Invitation~Jan 2021 – ~Nov 2021 · 10 months · monthly snapshotEnrolling By Invitation~Nov 2021 – ~Dec 2021 · 30 days · monthly snapshotEnrolling By Invitation~Dec 2021 – ~Dec 2022 · 12 months · monthly snapshotEnrolling By Invitation~Dec 2022 – ~Jul 2024 · 19 months · monthly snapshotEnrolling By Invitation~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshotEnrolling By Invitation~Sep 2024 – present · 23 months · monthly snapshotEnrolling By Invitation

Change History

8 versions recorded
  1. Sep 2024 — Present [monthly]

    Enrolling By Invitation

  2. Jul 2024 — Sep 2024 [monthly]

    Enrolling By Invitation

  3. Dec 2022 — Jul 2024 [monthly]

    Enrolling By Invitation

  4. Dec 2021 — Dec 2022 [monthly]

    Enrolling By Invitation

  5. Nov 2021 — Dec 2021 [monthly]

    Enrolling By Invitation

Show 3 earlier versions
  1. Jan 2021 — Nov 2021 [monthly]

    Enrolling By Invitation

  2. Nov 2020 — Jan 2021 [monthly]

    Enrolling By Invitation

  3. Jan 2020 — Nov 2020 [monthly]

    Enrolling By Invitation

    First recorded

Aug 2019

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • Canadian Institutes of Health Research (CIHR)
  • University of British Columbia
Data source: University of British Columbia

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations