Recruiting OBSERVATIONAL NCT07251673
Longitudinal Study of Phenotypic and Developmental Severity in Patients With Dravet Syndrome With SCN1A Gene Mutation (LONG-DS)
Sponsor: Assistance Publique - Hôpitaux de Paris
Conditions
Dravet Syndrome
Updated 2 times since 2025 Last updated: Feb 2, 2026 Started: Sep 15, 2025 Primary completion: Oct 1, 2030 Completion: Oct 1, 2030
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.
A observational or N/A phase clinical study on Dravet Syndrome, this trial is actively recruiting participants. The trial is conducted by Assistance Publique - Hôpitaux de Paris and has accumulated 2 data snapshots since 2025. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.
Status Flow
Change History
2 versions recorded-
Feb 2026 — Present [monthly]
Recruiting
-
Dec 2025 — Feb 2026 [monthly]
Recruiting
First recorded
Sep 2025
Trial started
Per CT.gov start date — pre-dates our first snapshot
Eligibility Summary
No eligibility information available.
Contact Information
Sponsor contact:
- Assistance Publique - Hôpitaux de Paris
- Encoded Therapeutics
Data source: Assistance Publique - Hôpitaux de Paris
For direct contact, visit the study record on ClinicalTrials.gov .