Characteristics of Nondystrophic Myotonias
Nondystrophic Myotonias: Genotype-phenotype Correlation and Longitudinal Study
Sponsor: Office of Rare Diseases (ORD)
This observational or N/A phase trial investigates Myotonia Congenita and Myotonic Disorders and is currently completed. Office of Rare Diseases (ORD) leads this study, which shows 10 recorded versions since 2006 — indicating substantial longitudinal coverage. The change history captured here reflects the iterative nature of clinical trial conduct.
Change History
10 versions recorded-
Sep 2024 — Present [monthly]
Completed
-
Jul 2024 — Sep 2024 [monthly]
Completed
-
Dec 2021 — Jul 2024 [monthly]
Completed
-
Jan 2021 — Dec 2021 [monthly]
Completed
-
Nov 2020 — Jan 2021 [monthly]
Completed
▶ Show 5 earlier versions
-
Jun 2018 — Nov 2020 [monthly]
Completed
-
May 2018 — Jun 2018 [monthly]
Completed
-
Apr 2018 — May 2018 [monthly]
Completed
Phase: NA → None
-
Aug 2017 — Apr 2018 [monthly]
Completed NA
-
Jan 2017 — Aug 2017 [monthly]
Completed NA
First recorded
Feb 2006
Trial started
Per CT.gov start date — pre-dates our first snapshot
Eligibility Summary
No eligibility information available.
Contact Information
- Office of Rare Diseases (ORD)
- Rare Diseases Clinical Research Network
- Richard Barohn, MD
For direct contact, visit the study record on ClinicalTrials.gov .
Study Locations
- • Boston, United States
- • Dallas, United States
- • Kansas City, United States
- • London, Canada
- • London, United Kingdom
- • Rochester, United States