Unknown OBSERVATIONAL NCT03222336

Natural History in Fabry Patients With IVS4+919G>A Mutation

Study of Natural History Among Patients With Chinese Hotspot Late-onset Fabry Mutation IVS4+919G>A Through Family Pedigree Analysis

Sponsor: Sanofi

Conditions Fabry Disease, Cardiac Variant

Interventions Family pedigree and data collection

Updated 7 times since 2017 Last updated: Jul 16, 2017 Started: Sep 1, 2017 Primary completion: Jun 1, 2020 Completion: Sep 30, 2020

This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

This observational or N/A phase trial investigates Fabry Disease, Cardiac Variant and is currently ongoing. Sanofi leads this study, which shows 7 recorded versions since 2017 — indicating limited longitudinal coverage. Heart and vascular conditions benefit from the kind of long-term tracking this trial provides.

Status Flow

Change History

7 versions recorded

Sep 2024 — Present [monthly]

Unknown
Jul 2024 — Sep 2024 [monthly]

Unknown

Status: Unknown Status → Unknown
Jan 2021 — Jul 2024 [monthly]

Unknown Status
Nov 2020 — Jan 2021 [monthly]

Unknown Status

Status: Not Yet Recruiting → Unknown Status
Jun 2018 — Nov 2020 [monthly]

Not Yet Recruiting

▶ Show 2 earlier versions

Apr 2018 — Jun 2018 [monthly]

Not Yet Recruiting

Phase: NA → None
Aug 2017 — Apr 2018 [monthly]

Not Yet Recruiting NA

First recorded

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:

Sanofi
Taipei Veterans General Hospital, Taiwan

Data source: Taipei Veterans General Hospital, Taiwan

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations

No location information available.