deltatrials
Active Not Recruiting OBSERVATIONAL NCT03709784

Spinraza in Adult Spinal Muscular Atrophy (SAS)

A Prospective, Multi-center, Observational Study of the Safety, Tolerability and Effectiveness of SPINRAZA® (Nusinersen) in Adult Patients With Spinal Muscular Atrophy

Sponsor: Washington University School of Medicine

Updated 18 times since 2018 Last updated: Nov 15, 2024 Started: Aug 16, 2018 Primary completion: Dec 31, 2024 Completion: Jan 1, 2025
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

Listed as NCT03709784, this observational or N/A phase trial focuses on Spinal Muscular Atrophy and Spinal Muscular Atrophy Type 3 and remains ongoing. Sponsored by Washington University School of Medicine, it has been updated 18 times since 2018, reflecting substantial change activity. This study adds to the evidence base for this therapeutic area through structured, versioned documentation.

Status Flow

~Nov 2018 – ~Jan 2019 · 2 months · monthly snapshot~Jan 2019 – ~Jun 2019 · 5 months · monthly snapshot~Jun 2019 – ~Nov 2019 · 5 months · monthly snapshot~Nov 2019 – ~Dec 2019 · 30 days · monthly snapshot~Dec 2019 – ~May 2020 · 5 months · monthly snapshot~May 2020 – ~Sep 2020 · 4 months · monthly snapshot~Sep 2020 – ~Nov 2020 · 2 months · monthly snapshot~Nov 2020 – ~Jan 2021 · 2 months · monthly snapshot~Jan 2021 – ~Jun 2021 · 5 months · monthly snapshot~Jun 2021 – ~Sep 2021 · 3 months · monthly snapshot~Sep 2021 – ~Dec 2021 · 3 months · monthly snapshot~Dec 2021 – ~Sep 2022 · 9 months · monthly snapshot~Sep 2022 – ~Dec 2023 · 15 months · monthly snapshot~Dec 2023 – ~Jul 2024 · 7 months · monthly snapshot~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshot~Sep 2024 – ~Dec 2024 · 3 months · monthly snapshot~Dec 2024 – ~Sep 2025 · 9 months · monthly snapshot~Sep 2025 – present · 10 months · monthly snapshot

Change History

18 versions recorded
  1. Sep 2025 — Present [monthly]

    Active Not Recruiting

  2. Dec 2024 — Sep 2025 [monthly]

    Active Not Recruiting

    Status: RecruitingActive Not Recruiting

  3. Sep 2024 — Dec 2024 [monthly]

    Recruiting

  4. Jul 2024 — Sep 2024 [monthly]

    Recruiting

  5. Dec 2023 — Jul 2024 [monthly]

    Recruiting

    Status: Active Not RecruitingRecruiting

Show 13 earlier versions
  1. Sep 2022 — Dec 2023 [monthly]

    Active Not Recruiting

  2. Dec 2021 — Sep 2022 [monthly]

    Active Not Recruiting

  3. Sep 2021 — Dec 2021 [monthly]

    Active Not Recruiting

    Status: RecruitingActive Not Recruiting

  4. Jun 2021 — Sep 2021 [monthly]

    Recruiting

  5. Jan 2021 — Jun 2021 [monthly]

    Recruiting

  6. Nov 2020 — Jan 2021 [monthly]

    Recruiting

  7. Sep 2020 — Nov 2020 [monthly]

    Recruiting

  8. May 2020 — Sep 2020 [monthly]

    Recruiting

  9. Dec 2019 — May 2020 [monthly]

    Recruiting

  10. Nov 2019 — Dec 2019 [monthly]

    Recruiting

  11. Jun 2019 — Nov 2019 [monthly]

    Recruiting

  12. Jan 2019 — Jun 2019 [monthly]

    Recruiting

  13. Nov 2018 — Jan 2019 [monthly]

    Recruiting

    First recorded

Aug 2018

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • Washington University School of Medicine
Data source: Washington University School of Medicine

For direct contact, visit the study record on ClinicalTrials.gov .