deltatrials
Active Not Recruiting OBSERVATIONAL NCT03853486

ATHN 9: Severe VWD Natural History Study

ATHN 9: A Natural History Cohort Study of the Safety, Effectiveness, and Practice of Treatment for People With Severe Von Willebrand Disease (VWD)

Sponsor: American Thrombosis and Hemostasis Network

Updated 20 times since 2019 Last updated: Mar 11, 2025 Started: Jun 18, 2019 Primary completion: Dec 31, 2025 Completion: Jul 30, 2026
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

A observational or N/A phase clinical study on Von Willebrand Diseases, this trial is ongoing. The trial is conducted by American Thrombosis and Hemostasis Network and has accumulated 20 data snapshots since 2019. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.

Status Flow

~Mar 2019 – ~Apr 2019 · 31 days · monthly snapshot~Apr 2019 – ~May 2019 · 30 days · monthly snapshot~May 2019 – ~Apr 2020 · 11 months · monthly snapshot~Apr 2020 – ~May 2020 · 30 days · monthly snapshot~May 2020 – ~Nov 2020 · 6 months · monthly snapshot~Nov 2020 – ~Jan 2021 · 2 months · monthly snapshot~Jan 2021 – ~Sep 2021 · 8 months · monthly snapshot~Sep 2021 – ~Dec 2021 · 3 months · monthly snapshot~Dec 2021 – ~Jan 2022 · 31 days · monthly snapshot~Jan 2022 – ~Feb 2022 · 31 days · monthly snapshot~Feb 2022 – ~Mar 2022 · 28 days · monthly snapshot~Mar 2022 – ~Apr 2023 · 13 months · monthly snapshot~Apr 2023 – ~Sep 2023 · 5 months · monthly snapshot~Sep 2023 – ~Nov 2023 · 2 months · monthly snapshot~Nov 2023 – ~Feb 2024 · 3 months · monthly snapshot~Feb 2024 – ~Jul 2024 · 5 months · monthly snapshot~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshot~Sep 2024 – ~Apr 2025 · 7 months · monthly snapshot~Apr 2025 – ~Sep 2025 · 5 months · monthly snapshot~Sep 2025 – present · 10 months · monthly snapshot

Change History

20 versions recorded
  1. Sep 2025 — Present [monthly]

    Active Not Recruiting

  2. Apr 2025 — Sep 2025 [monthly]

    Active Not Recruiting

  3. Sep 2024 — Apr 2025 [monthly]

    Active Not Recruiting

  4. Jul 2024 — Sep 2024 [monthly]

    Active Not Recruiting

  5. Feb 2024 — Jul 2024 [monthly]

    Active Not Recruiting

Show 15 earlier versions
  1. Nov 2023 — Feb 2024 [monthly]

    Active Not Recruiting

    Status: RecruitingActive Not Recruiting

  2. Sep 2023 — Nov 2023 [monthly]

    Recruiting

  3. Apr 2023 — Sep 2023 [monthly]

    Recruiting

  4. Mar 2022 — Apr 2023 [monthly]

    Recruiting

  5. Feb 2022 — Mar 2022 [monthly]

    Recruiting

  6. Jan 2022 — Feb 2022 [monthly]

    Recruiting

  7. Dec 2021 — Jan 2022 [monthly]

    Recruiting

  8. Sep 2021 — Dec 2021 [monthly]

    Recruiting

  9. Jan 2021 — Sep 2021 [monthly]

    Recruiting

  10. Nov 2020 — Jan 2021 [monthly]

    Recruiting

  11. May 2020 — Nov 2020 [monthly]

    Recruiting

  12. Apr 2020 — May 2020 [monthly]

    Recruiting

    Status: Enrolling By InvitationRecruiting

  13. May 2019 — Apr 2020 [monthly]

    Enrolling By Invitation

    Status: Not Yet RecruitingEnrolling By Invitation

  14. Apr 2019 — May 2019 [monthly]

    Not Yet Recruiting

  15. Mar 2019 — Apr 2019 [monthly]

    Not Yet Recruiting

    First recorded

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • American Thrombosis and Hemostasis Network
  • Takeda
Data source: American Thrombosis and Hemostasis Network

For direct contact, visit the study record on ClinicalTrials.gov .