deltatrials
Recruiting OBSERVATIONAL NCT04176523

Understanding the Long-Term Management of Organic Acidemia Patients With CARBAGLU®: A Mixed Methods Approach (PROTECT)

Sponsor: RECORDATI GROUP

Interventions Carglumic Acid
Updated 12 times since 2019 Last updated: Feb 2, 2024 Started: Jan 15, 2019 Primary completion: Dec 30, 2024 Completion: Jul 30, 2029
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

A observational or N/A phase clinical study on Methylmalonic Acidemia and Propionic Acidemia, this trial is actively recruiting participants. The trial is conducted by RECORDATI GROUP and has accumulated 12 data snapshots since 2019. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.

Status Flow

~Dec 2019 – ~Jan 2020 · 31 days · monthly snapshotRecruiting~Jan 2020 – ~Feb 2020 · 31 days · monthly snapshotRecruiting~Feb 2020 – ~Jan 2021 · 11 months · monthly snapshotRecruiting~Jan 2021 – ~Jan 2022 · 12 months · monthly snapshotRecruiting~Jan 2022 – ~Apr 2023 · 15 months · monthly snapshotUnknown Status~Apr 2023 – ~Dec 2023 · 8 months · monthly snapshotRecruiting~Dec 2023 – ~Mar 2024 · 3 months · monthly snapshotRecruiting~Mar 2024 – ~Jul 2024 · 4 months · monthly snapshotRecruiting~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshotRecruiting~Sep 2024 – ~Sep 2025 · 12 months · monthly snapshotRecruiting~Sep 2025 – ~Dec 2025 · 3 months · monthly snapshotRecruiting~Dec 2025 – present · 7 months · monthly snapshotRecruiting

Change History

12 versions recorded
  1. Dec 2025 — Present [monthly]

    Recruiting

  2. Sep 2025 — Dec 2025 [monthly]

    Recruiting

  3. Sep 2024 — Sep 2025 [monthly]

    Recruiting

  4. Jul 2024 — Sep 2024 [monthly]

    Recruiting

  5. Mar 2024 — Jul 2024 [monthly]

    Recruiting

Show 7 earlier versions
  1. Dec 2023 — Mar 2024 [monthly]

    Recruiting

  2. Apr 2023 — Dec 2023 [monthly]

    Recruiting

    Status: Unknown StatusRecruiting

  3. Jan 2022 — Apr 2023 [monthly]

    Unknown Status

    Status: RecruitingUnknown Status

  4. Jan 2021 — Jan 2022 [monthly]

    Recruiting

  5. Feb 2020 — Jan 2021 [monthly]

    Recruiting

  6. Jan 2020 — Feb 2020 [monthly]

    Recruiting

  7. Dec 2019 — Jan 2020 [monthly]

    Recruiting

    First recorded

Jan 2019

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • RECORDATI GROUP
Data source: RECORDATI GROUP

For direct contact, visit the study record on ClinicalTrials.gov .