Recruiting OBSERVATIONAL NCT05954416

FARD (RaDiCo Cohort) (RaDiCo-FARD) (FARD)

National Cohort for Evaluation of the Burden of Rare Skin Diseases

Sponsor: Institut National de la Santé Et de la Recherche Médicale, France

Conditions Albinism Ectodermal Dysplasia Ichthyosis Incontinentia Pigmenti Inherited Epidermolysis Bullosa Mucous Membrane Pemphigoid Neurofibromatosis Type 1 Palmoplantar Keratoderma Pemphigus

Updated 5 times since 2023 Last updated: Feb 10, 2026 Started: Mar 7, 2018 Primary completion: Mar 7, 2027 Completion: Mar 7, 2027

This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

A observational or N/A phase clinical study on Albinism and Ectodermal Dysplasia, this trial is actively recruiting participants. The trial is conducted by Institut National de la Santé Et de la Recherche Médicale, France and has accumulated 5 data snapshots since 2018. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.

Status Flow

Change History

5 versions recorded

Feb 2026 — Present [monthly]

Recruiting
Mar 2025 — Feb 2026 [monthly]

Recruiting
Sep 2024 — Mar 2025 [monthly]

Recruiting
Jul 2024 — Sep 2024 [monthly]

Recruiting
Aug 2023 — Jul 2024 [monthly]

Recruiting

First recorded

Mar 2018

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:

Institut National de la Santé Et de la Recherche Médicale, France

Data source: Institut National de la Santé Et de la Recherche Médicale, France

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations

Bobigny, France , Bordeaux, France , Créteil, France , Dijon, France , Limoges, France , Marseille, France , Montpellier, France , Nice, France , Paris, France , Reims, France and 3 more locations