Recruiting OBSERVATIONAL NCT06330350

Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive Counselling

Investigating Perspectives of Patients With Genodermatosis and Healthcare Professionals on Reproductive Counselling

Sponsor: Maastricht University Medical Center

Conditions Albinism Basal Cell Nevus Syndrome Birt-Hogg-Dube Syndrome Cutis Laxa Ectodermal Dysplasia Epidermolysis Bullosa Ichthyosis Palmoplantar Keratoses Quality of Life Tuberous Sclerosis

Interventions Qualitative interview

Updated 4 times since 2024 Last updated: May 16, 2025 Started: Jan 1, 2024 Primary completion: Aug 31, 2025 Completion: Dec 31, 2025

This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

Listed as NCT06330350, this observational or N/A phase trial focuses on Albinism and Basal Cell Nevus Syndrome and remains actively recruiting participants. Sponsored by Maastricht University Medical Center, it has been updated 4 times since 2024, reflecting limited change activity. This study adds to the evidence base for this therapeutic area through structured, versioned documentation.

Status Flow

Change History

4 versions recorded

Jun 2025 — Present [monthly]

Recruiting
Sep 2024 — Jun 2025 [monthly]

Recruiting
Jul 2024 — Sep 2024 [monthly]

Recruiting
Apr 2024 — Jul 2024 [monthly]

Recruiting

First recorded

Jan 2024

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:

Maastricht University Medical Center

Data source: Maastricht University Medical Center

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations

• Maastricht, Netherlands