Pyruvate Kinase Deficiency Natural History Study (PKD NHS)
Pyruvate Kinase Deficiency (PKD) Natural History Study
Sponsor: Agios Pharmaceuticals, Inc.
A observational or N/A phase clinical study on Congenital Non-Spherocytic Hemolytic Anemia and Pyruvate Kinase Deficiency, this trial is completed. The trial is conducted by Agios Pharmaceuticals, Inc. and has accumulated 13 data snapshots since 2013. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.
Status Flow
Change History
13 versions recorded-
Sep 2025 — Present [monthly]
Completed
-
Sep 2024 — Sep 2025 [monthly]
Completed
-
Jul 2024 — Sep 2024 [monthly]
Completed
-
Jan 2021 — Jul 2024 [monthly]
Completed
-
Sep 2020 — Jan 2021 [monthly]
Completed
▶ Show 8 earlier versions
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Jun 2020 — Sep 2020 [monthly]
Completed
Status: Active Not Recruiting → Completed
-
Oct 2019 — Jun 2020 [monthly]
Active Not Recruiting
-
Jul 2018 — Oct 2019 [monthly]
Active Not Recruiting
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Jun 2018 — Jul 2018 [monthly]
Active Not Recruiting
-
Apr 2018 — Jun 2018 [monthly]
Active Not Recruiting
Phase: NA → None
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Jul 2017 — Apr 2018 [monthly]
Active Not Recruiting NA
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May 2017 — Jul 2017 [monthly]
Active Not Recruiting NA
Status: Recruiting → Active Not Recruiting
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Jan 2017 — May 2017 [monthly]
Recruiting NA
First recorded
Dec 2013
Trial started
Per CT.gov start date — pre-dates our first snapshot
Eligibility Summary
No eligibility information available.
Contact Information
- Agios Pharmaceuticals, Inc.
- Boston Children's Hospital
For direct contact, visit the study record on ClinicalTrials.gov .