Active Not Recruiting OBSERVATIONAL NCT05581511

Natural History Study of Cutaneous Neurofibromas in People With NF1 (cNF Natural Hx)

Natural History Study of Cutaneous Neurofibromas in People With Neurofibromatosis Type 1

Sponsor: Johns Hopkins University

Conditions Cutaneous Neurofibroma Neurofibromatosis (Nonmalignant) Neurofibromatosis 1 Neurofibromatosis Type 1

Interventions Evaluation of the natural history of cutaneous neurofibromas

Updated 6 times since 2022 Last updated: Oct 9, 2025 Started: Jun 28, 2021 Primary completion: Dec 31, 2028 Completion: Jun 30, 2029

This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

Listed as NCT05581511, this observational or N/A phase trial focuses on Cutaneous Neurofibroma and Neurofibromatosis (Nonmalignant) and remains ongoing. Sponsored by Johns Hopkins University, it has been updated 6 times since 2021, reflecting limited change activity. This study contributes to the evolving evidence base for cancer treatment protocols.

Status Flow

Change History

6 versions recorded

Nov 2025 — Present [monthly]

Active Not Recruiting
Nov 2024 — Nov 2025 [monthly]

Active Not Recruiting

Status: Recruiting → Active Not Recruiting
Sep 2024 — Nov 2024 [monthly]

Recruiting
Jul 2024 — Sep 2024 [monthly]

Recruiting
Nov 2023 — Jul 2024 [monthly]

Recruiting

▶ Show 1 earlier version

Nov 2022 — Nov 2023 [monthly]

Recruiting

First recorded

Jun 2021

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:

Johns Hopkins University
Neurofibromatosis Therapeutic Acceleration Program

Data source: Johns Hopkins University

For direct contact, visit the study record on ClinicalTrials.gov .

Study Locations

• Baltimore, United States