deltatrials
Recruiting OBSERVATIONAL NCT04003363

The United Kingdom National Registry for Myotonic Dystrophy

The UK National Registry for Myotonic Dystrophy

Sponsor: Newcastle University

Interventions Patient Registry
Updated 9 times since 2019 Last updated: Nov 28, 2023 Started: May 31, 2013 Primary completion: Jan 31, 2030 Completion: Dec 31, 2030
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

A observational or N/A phase clinical study on Myotonic Dystrophy, this trial is actively recruiting participants. The trial is conducted by Newcastle University and has accumulated 9 data snapshots since 2013. Longitudinal tracking of this trial contributes to a broader understanding of treatment development timelines.

Status Flow

~Aug 2019 – ~Nov 2020 · 15 months · monthly snapshotRecruiting~Nov 2020 – ~Jan 2021 · 2 months · monthly snapshotRecruiting~Jan 2021 – ~Jan 2022 · 12 months · monthly snapshotRecruiting~Jan 2022 – ~Dec 2022 · 11 months · monthly snapshotUnknown Status~Dec 2022 – ~Jan 2024 · 13 months · monthly snapshotRecruiting~Jan 2024 – ~Jul 2024 · 6 months · monthly snapshotRecruiting~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshotRecruiting~Sep 2024 – ~Sep 2025 · 12 months · monthly snapshotRecruiting~Sep 2025 – present · 10 months · monthly snapshotRecruiting

Change History

9 versions recorded
  1. Sep 2025 — Present [monthly]

    Recruiting

  2. Sep 2024 — Sep 2025 [monthly]

    Recruiting

  3. Jul 2024 — Sep 2024 [monthly]

    Recruiting

  4. Jan 2024 — Jul 2024 [monthly]

    Recruiting

  5. Dec 2022 — Jan 2024 [monthly]

    Recruiting

    Status: Unknown StatusRecruiting

Show 4 earlier versions
  1. Jan 2022 — Dec 2022 [monthly]

    Unknown Status

    Status: RecruitingUnknown Status

  2. Jan 2021 — Jan 2022 [monthly]

    Recruiting

  3. Nov 2020 — Jan 2021 [monthly]

    Recruiting

  4. Aug 2019 — Nov 2020 [monthly]

    Recruiting

    First recorded

May 2013

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • Newcastle University
Data source: Newcastle University

For direct contact, visit the study record on ClinicalTrials.gov .