UK SMA Patient Registry
Spinal Muscular Atrophy Patient Registry of the United Kingdom and Ireland
Sponsor: Adult SMA REACH
This observational or N/A phase trial investigates SMA and Spinal Muscular Atrophy and is currently actively recruiting participants. Adult SMA REACH leads this study, which shows 8 recorded versions since 2008 — indicating limited longitudinal coverage. The change history captured here reflects the iterative nature of clinical trial conduct.
Status Flow
Change History
8 versions recorded-
Sep 2024 — Present [monthly]
Recruiting
-
Aug 2024 — Sep 2024 [monthly]
Recruiting
-
Jul 2024 — Aug 2024 [monthly]
Recruiting
-
Nov 2022 — Jul 2024 [monthly]
Recruiting
Status: Unknown Status → Recruiting
-
Mar 2022 — Nov 2022 [monthly]
Unknown Status
Status: Recruiting → Unknown Status
▶ Show 3 earlier versions
-
Apr 2021 — Mar 2022 [monthly]
Recruiting
-
Jan 2021 — Apr 2021 [monthly]
Recruiting
-
Apr 2020 — Jan 2021 [monthly]
Recruiting
First recorded
Jul 2008
Trial started
Per CT.gov start date — pre-dates our first snapshot
Eligibility Summary
No eligibility information available.
Contact Information
- Adult SMA REACH
- Biogen
- Newcastle University
- Roche Pharma AG
- SMA REACH UK
For direct contact, visit the study record on ClinicalTrials.gov .