deltatrials
Unknown OBSERVATIONAL NCT04001595

Global FKRP Registry

Global Fukutin-Related Protein Registry

Sponsor: CureLGMD2i

Interventions Patient Registry
Updated 10 times since 2019 Last updated: Jan 26, 2024 Started: Nov 30, 2013 Primary completion: Dec 31, 2025 Completion: Dec 31, 2025
This information is for research purposes only and is not medical advice. Consult a healthcare provider before making any medical decision.

This observational or N/A phase trial investigates Congenital Muscular Dystrophy and FKRP Gene Mutation and is currently ongoing. CureLGMD2i leads this study, which shows 10 recorded versions since 2013 — indicating substantial longitudinal coverage. The change history captured here reflects the iterative nature of clinical trial conduct.

Status Flow

~Jul 2019 – ~Aug 2019 · 31 days · monthly snapshotRecruiting~Aug 2019 – ~Nov 2020 · 15 months · monthly snapshotRecruiting~Nov 2020 – ~Jan 2021 · 2 months · monthly snapshotRecruiting~Jan 2021 – ~Jan 2022 · 12 months · monthly snapshotRecruiting~Jan 2022 – ~Nov 2022 · 10 months · monthly snapshotUnknown Status~Nov 2022 – ~Feb 2024 · 15 months · monthly snapshotRecruiting~Feb 2024 – ~Jul 2024 · 5 months · monthly snapshotRecruiting~Jul 2024 – ~Sep 2024 · 2 months · monthly snapshotRecruiting~Sep 2024 – ~Feb 2026 · 17 months · monthly snapshotRecruiting~Feb 2026 – present · 5 months · monthly snapshotUnknown

Change History

10 versions recorded
  1. Feb 2026 — Present [monthly]

    Unknown

    Status: RecruitingUnknown

  2. Sep 2024 — Feb 2026 [monthly]

    Recruiting

  3. Jul 2024 — Sep 2024 [monthly]

    Recruiting

  4. Feb 2024 — Jul 2024 [monthly]

    Recruiting

  5. Nov 2022 — Feb 2024 [monthly]

    Recruiting

    Status: Unknown StatusRecruiting

Show 5 earlier versions
  1. Jan 2022 — Nov 2022 [monthly]

    Unknown Status

    Status: RecruitingUnknown Status

  2. Jan 2021 — Jan 2022 [monthly]

    Recruiting

  3. Nov 2020 — Jan 2021 [monthly]

    Recruiting

  4. Aug 2019 — Nov 2020 [monthly]

    Recruiting

  5. Jul 2019 — Aug 2019 [monthly]

    Recruiting

    First recorded

Nov 2013

Trial started

Per CT.gov start date — pre-dates our first snapshot

Eligibility Summary

No eligibility information available.

Contact Information

Sponsor contact:
  • CureLGMD2i
  • LGMD2i Research Fund
  • Ludwig-Maximilians - University of Munich
  • Newcastle University
Data source: Newcastle University

For direct contact, visit the study record on ClinicalTrials.gov .